Category Archives: Patients’ tales

Patients’ tales of success or struggle with doctors, school, work or social lives

Edinburgh guide dog training: Day 9

Today we met the District Client Representative (DCR) for the Edinburgh guide dog team.  His guide dog is the brother of Magic the Blue Peter puppy.  We had a good chat about his role and the role of our representative … Continue reading

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Edinburgh guide dog training: Day 8

Annie rocks at Rock Choir I am a member of Rock Choir in Newcastle. There are Rock Choirs right across the UK. We sing rock, pop, Motown and gospel. I just love the atmosphere and the buzz of singing in a … Continue reading

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Edinburgh guide dog training: Day 7

Today was much cooler so we headed of into the city centre on the bus to walk in some of the busier areas and also to feed my latte addiction. I had to settle for Costa rather than Starbucks but … Continue reading

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Edinburgh guide dog training: Day 6

Day 6 started with visitors.  One of the other people on class had a chance meeting with a gentleman staying in the hotel who was doing the marathon to raise money for Guide Dogs. We agreed that it would be … Continue reading

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Sarah’s introduction

Sarah successfully stood for election to be an Aniridia Network UK trustee in 2012/13. She couldn’t be at the annual general meeting in person. This is the nomination statement she provided instead. I have aniridia. Over the years I have … Continue reading

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Edinburgh guide dog training: Days 4 and 5

I have been overly excited about big busies, little busies and meal times. On day 4 Anne had two big busies, some little busies and ate most of her breakfast but only a quarter of her tea. On day 5 … Continue reading

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Edinburgh Guide Dog training: Day 3

I had a very restless night with Annie who was pacing a lot. I took her for a busy in the middle of the night because she hadn’t been since I had got her at 2pm. She appears to have … Continue reading

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Edinburgh guide dog training: Day 2

Annie is in the building! As I type this she is laid on the floor next to me chilling out. This morning started off with breakfast after a broken nights sleep. I think the excitement had got to me. After … Continue reading

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Nigel’s introduction

Nigel successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person. This is the nomination statement he provided instead. I have aniridia and grew up when aniridia … Continue reading

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Edinburgh guide dog training: Day 1

Yesterday,walking to work, I was so glad that it will be the last time I have to do that route with a cane for a long while.  The sun was shining and I had left my sunglasses at work the … Continue reading

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