Support us
We recommend
Advertisements
Tag Archives: Aniridia Europe
Invitation to aniridia youth summer camp 2015 in Italy
Registration deadline 1 February 2015 Aged 15-25 and have aniridia? Parent or sibling of such a person? You are invited to a fabulous activity holiday in Italy with 80 others from around Europe. The camp will run 4-14 August 2015 and will … Continue reading
Posted in ANUK news, Other agencies
Tagged Aniridia Europe, event, Youth In Action Summer Camp
Leave a comment
Youth With Aniridia In Europe summer camp 2015
A summer camp in north east Italy for young people with aniridia across Europe is being organised. You can be involved with this exciting event The camp will be in summer 2015 in a national park in the Venetia region … Continue reading
1st European Conference on Aniridia: Day 3
Day 1 and day 2 had been the scientific conference. Today was for a wider audience: those affected by aniridia. There were a series of short presentations, alternating between Norwegian and English. The English ones were slightly simplified, shortened versions … Continue reading
1st European Conference on Aniridia: Day 2
Saturday was full of presentations from various doctors and researchers. Professor van Heyningen gave two talks about the genetic aspects of aniridia. This included looking at the full range of the effects of PAX6 mutation, plus aniridia without PAX6 mutations … Continue reading
1st European Conference on Aniridia: Day 1
The hotel’s breakfast buffet was certainly broad but not quite enough to include staple English breakfast elements such as bacon and hash browns or fried bread. It was sautéed potatoes and mini sausages instead. After breakfast I took a walk … Continue reading
1st European Conference on Aniridia: Arrival
I like visiting other cities and I decided it was time to get a more international angle and more medical knowledge on aniridia. So I’ve come to the 1st European Aniridia Conference in Oslo. This evening I left work and … Continue reading
Aniridia Europe board meeting and networking event
After the establishment of Aniridia Europe its board members met in Paris on 19 and 20 November 2011. It was a chance to meet face to face and also for new members from Germany and Bulgaria to meet us all for the first … Continue reading
