Tag Archives: Aniridia Europe

18-30? Apply for the 3-day aniridia academy in Stockholm

Posted on December 19, 2023 by Aniridia Network

We have a great Christmas present and new year offering for you.But you need to act quickly to have a chance to take it! We want to help 18-30 year olds with aniridia kickstart your careers, advance your studies or … Continue reading →

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Tickets for European Aniridia Conference 2024 selling out

Posted on December 17, 2023 by Aniridia Network

There has been a very demand for the places at the 7th European Aniridia Conference, in Stockholm, Sweden. That is fantastic and very promising, but unfortunately they are running out of tickets. Book now if you want to attend. Including … Continue reading →

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6th European Aniridia Conference

Posted on June 5, 2022 by Aniridia Network

By Claire My daughter Laura, who has aniridia, and I set off for the conference early on Friday 3rd June to join other families seeking more information about this rare condition that many health professionals are unaware of. How heartening to … Continue reading →

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5th European Aniridia Conference

Posted on August 1, 2021 by Aniridia Network

We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading →

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Five go to Paris for European Conference on Aniridia 2018

Posted on August 26, 2018 by Aniridia Network

Five members of Aniridia Network travelled to Paris for a conference about the science and treatment of aniridia. They met the world’s top experts on aniridia and learned about their latest research and techniques. They also took part in a … Continue reading →

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Invitation to aniridia youth summer camp 2015 in Italy

Posted on January 11, 2015 by Aniridia Network

Registration deadline 1 February 2015 Aged 15-25 and have aniridia? Parent or sibling of such a person? You are invited to a fabulous activity holiday in Italy with 80 others from around Europe. The camp will run 4-14 August 2015 and will … Continue reading →

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Youth With Aniridia In Europe summer camp 2015

Posted on February 11, 2014 by Aniridia Network

A summer camp in north east Italy for young people with aniridia across Europe is being organised. You can be involved with this exciting event The camp will be in summer 2015 in a national park in the Venetia region … Continue reading →

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1st European Conference on Aniridia: Day 3

Posted on June 10, 2012 by James

Day 1 and day 2 had been the scientific conference. Today was for a wider audience: those affected by aniridia.  There were a series of short presentations, alternating between Norwegian and English. The English ones were slightly simplified, shortened versions … Continue reading →

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1st European Conference on Aniridia: Day 2

Posted on June 10, 2012 by James

Saturday was full of presentations from various doctors and researchers. Professor van Heyningen gave two talks about the genetic aspects of aniridia. This included looking at the full range of the effects of PAX6 mutation, plus aniridia without PAX6 mutations … Continue reading →

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1st European Conference on Aniridia: Day 1

Posted on June 9, 2012 by James

The hotel’s breakfast buffet was certainly broad but not quite enough to include staple English breakfast elements such as bacon and hash browns or fried bread. It was sautéed potatoes and mini sausages instead. After breakfast I took a walk … Continue reading →

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