Category Archives: Campaigns

Celebrating Difference book crowdfunder

A crowdfunding campaign is underway to publish a book featuring children with rare conditions, including two with WAGR 11p Deletion Syndrome. Give the book your support and get a copy. The proposed book is the result of a photography project … Continue reading

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Aniridia Day 21 June 2019

On this year’s day for improving understanding of aniridia around the world, we want you to focus on possibilities: tell everyone what it is possible to do with a visual impairment come together to show there are similar people nearby … Continue reading

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Posted in Campaigns, Uncategorized | Tagged | 1 Comment

Nystagmus Network & Awareness Day

Many people with aniridia also have nystagmus, and this year’s Nystagmus Awareness Day will take place on 20th June – the day before Aniridia Day! The Nystagmus Network have celebrated Wobbly Wednesday in November since 2013, but this year they have permanently … Continue reading

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Aniridia poem competition UK results

We are elated to announce the winner plus the awarding of a special prize in our Aniridia Day related poetry competition. “I was impressed with the outstanding talent.” said judge and new trustee Emily. We were delighted to receive 10 … Continue reading

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Win up to £40 in the aniridia poetry competition

Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading

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Launch of Aniridia Day: 21 June 2017

Join us celebrating the first ever international Aniridia Day on 21st June 2017! What is it? It will be a exciting time to coordinate activities and improve understanding of the rare genetic eye condition aniridia.  Please take part in the campaigns: … Continue reading

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Travel insurance for people with aniridia

We are often asked: ”Do I need to declare aniridia when applying for travel insurance?” This is often accompanied by outcry at an exorbitant quote when doing so. Regular travel insurance companies often charge a hefty premium to cover medical conditions. … Continue reading

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Take a (No) #IrisSelfie to raise awareness and funds for aniridia

We want to raise awareness of aniridia, help those who are visually impaired because of it, and support treatment research. So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / … Continue reading

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Protected: Buddy scheme profiles needed

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Combating overhaning branches

I’ve got an idea in my head to do something about plants that obstruct the pavement. I’m fed up with ducking, flinching or actually getting scratched by the branches or leaves of things growing in people’s front gardens. That’s my … Continue reading

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Posted in Campaigns, Patients' tales | Tagged , | 2 Comments