Tag Archives: meetup

Meet ups for Aniridia Day 2022

Five gatherings of people affected by aniridia were held around the UK to celebrate this, Aniridia Day. Adults with aniridia hosted the get-togethers. Fellow patients, parents, children, came along to chat about life with our condition. Aniridia Network also bought … Continue reading

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Newcastle meet up 9 July 2022

Don’t miss these opportunities to chat in person with people the north east, affected by aniridia. An adults with aniridia is holding a get-togethers in Newcastle. Fellow patients, parents, children, professionals and others all should come along to chat about … Continue reading

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Rare Disease Day 2020 Meetup

Rare Disease Day is always a very good opportunity to bring people together and raise further awareness of aniridia. To mark the occasion, trustee Eleanor Burke hosted an aniridia meetup at Wynn’s Hotel in Dublin on Saturday 29 February 2020, … Continue reading

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Scotland & London Meet-Ups

This month we held 2 successful meet-ups in different parts of the UK, bringing together a variety of people affected by aniridia. In the north we were proud to hold our first ever event in Scotland, when trustee Eleanor Burke … Continue reading

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London meet-up 2017

This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading

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First aniridia meeting in Ireland

Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading

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London meet-up 2016

We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading

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London meet up 2015

We’re had an informal get together in Kensington on today. Ten people came along to for coffee and chat about aniridia. This included people of all ages who have it and parents of those who do. It was held as a … Continue reading

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Meet-up in Newcastle

From 5pm 9 May 2015 Rendezvous Bar, County Hotel, Neville Street, Newcastle-Upon-Type, NE1 5DF Everyone affected by aniridia: patients, relatives, doctors, teachers etc was invited to join us in to find out more about each other and discuss aniridia related topics. … Continue reading

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Milton Keynes meet-up

We met on met to discuss aniridia and celebrate Rare Disease Day 2015 at Whetherspoons at XScape, Milton Keynes. We had a great evening talking about dealing with school, doctor and even being a stuntman while having aniridia. If you want to meet more … Continue reading

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