Tag Archives: press

Natasha and Violet: fundraising and media stars

Posted on March 6, 2012 by Aniridia Network

Natasha, mum to Violet with aniridia responded to our calls for fundraising and media volunteers. She’s been holding raffles and selling goods via Facebook in her home town of Halifax, West Yorkshire. The current drive is for Easter eggs … Continue reading →

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Posted in Fundraising, Parents' accounts | Tagged fundraising, press | Leave a comment

Harry wins teen “Caring For Others” award

Posted on November 25, 2011 by Aniridia Network

A boy with aniridia has won an award for his caring nature. Harry, 16, from the Exeter area won the “Caring For Others” category in the Teen Awards run by the Exeter Express & Echo newspaper. The awards “show that teenagers … Continue reading →

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Fact check on Daily Mail piece about teenager with WAGR/11p deletion syndrome

Posted on November 24, 2011 by Aniridia Network

A recent Daily Mail article aroused our interest. The piece features Gemma who has WAGR, also known as 11p deletion syndrome after its genetic cause. It includes aniridia among its possible symptoms. We were glad to see a national newspaper … Continue reading →