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Tag Archives: meeting
First aniridia meeting in Ireland
Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading
London meet-up 2016
We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading
Presentations & Exhibition at Meeting 2016
After the morning riding tandems and playing VI cricket, the Aniridia Network UK Meeting 2016 moved to nearby Holy Trinity church. Sitting down to for lunch gave us all more opportunities to chat, meet up with and make new friends. “Meeting … Continue reading
Tandems and Cricket – Meeting 2016
The main Aniridia Network UK event of 2016 took place in Wallington, Surrey. In a change from our usual format, we spent the morning in a park. dry and clear, ideal for trying out tandem riding and visually impaired cricket. Lots of … Continue reading
Posted in ANUK news
Tagged conference, conference 2016, cricket, meeting, sport, tandem
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Meet-up in Newcastle 24 February 2013
People in North East England affected by aniridia came together in on Sunday 24 February for lunch and chat and fun. The lunchtime meet-up was in Zizzi in Metrocentre, Newcastle Partners, family and friends of people affected by aniridia were all … Continue reading
Aniridia Europe board meeting and networking event
After the establishment of Aniridia Europe its board members met in Paris on 19 and 20 November 2011. It was a chance to meet face to face and also for new members from Germany and Bulgaria to meet us all for the first … Continue reading
Invitation to the Oslo Aniridia Conference
Aniridi Norge (the Norwegian aniridia association) has organised the first European scientific conference about aniridia as well as an international gathering for the aniridia community. You are invited between 8 and 10 June 2012. James and Katie from Aniridia Network … Continue reading
Posted in Medical staff talking, Parents' accounts, Patients' tales, Research
Tagged Aniridi Norge, conference, meeting, Oslo
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London meet up: A personal review
By Keith The London meet up was surreal. Of the 14 people who turned up, so many of them were so like me. In one evening, I learnt so much about a condition I’ve had since birth. For the first … Continue reading
London meet-up review: A big success
A fantastic 14 people with aniridia, plus relatives came to the meet-up in London in early November. There was great chat about all aspects of life and new friendships created. The evening started at 6pm at Belans bar on High … Continue reading
Manchester for annual meeting 2012
Manchester, Saturday 19 May 2012 – put it on your calendar right now. That’s where and when the next big Aniridia Network UK meeting will be. It is your chance to hear from and ask questions in person to: people who … Continue reading
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