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Tag Archives: conference
Responses to feedback about Conference 2018
Thank you for all the excellent feedback about this years conference. We will certainly try to put in place many of the suggestions that were made. We will publish the survey results shortly. There were some points made, that we … Continue reading
Liz’s Aniridia Network Conference 2018
Intense but recommended: Liz’s account of Aniridia Network Conference 2018, the first time she come to such an event. Continue reading
Fern Lulham – Living with Aniridia
We were delighted to welcome motivational speaker Fern Lulham to the Aniridia Network Conference in April. She gave a very uplifting presentation about her life with aniridia, which got a very positive reaction from the audience. She also took the … Continue reading
Nystagmus Network & Awareness Day
Many people with aniridia also have nystagmus, and this year’s Nystagmus Awareness Day will take place on 20th June – the day before Aniridia Day! The Nystagmus Network have celebrated Wobbly Wednesday in November since 2013, but this year they have permanently … Continue reading
Posted in Campaigns
Tagged conference, conference 2018, nystagmus, nystagmus network
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PAX6 and the Cornea: An Eye to the Future
One of the speakers at this year’s conference was Thanos Papadimitropoulos from University of Liverpool. He told us about his team’s research, funded by Fight for Sight, into a potential new therapy that may one day be able to slow down or … Continue reading
Call for Aniridia Network Ireland
By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading
Posted in ANUK news, Patients' tales
Tagged conference, event, Republic of IIreland, volunteering
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Just when you thought it was all over
You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading
Presentations & Exhibition at Meeting 2016
After the morning riding tandems and playing VI cricket, the Aniridia Network UK Meeting 2016 moved to nearby Holy Trinity church. Sitting down to for lunch gave us all more opportunities to chat, meet up with and make new friends. “Meeting … Continue reading
2016 Annual General Meeting
The Annual General Meeting of Aniridia Network UK was held at: Holy Trinity Church , Maldon Road, Wallington, SM6 8BL at 2:30pm 14 May 2016 Read the minutes of the ANUK 2016 AGM (pdf) Agenda ANUK AGM minutes 2015 to be agreed Matters … Continue reading
Tandems and Cricket – Meeting 2016
The main Aniridia Network UK event of 2016 took place in Wallington, Surrey. In a change from our usual format, we spent the morning in a park. dry and clear, ideal for trying out tandem riding and visually impaired cricket. Lots of … Continue reading
Posted in ANUK news
Tagged conference, conference 2016, cricket, meeting, sport, tandem
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