Tag Archives: conference

Nystagmus Network & Awareness Day

Many people with aniridia also have nystagmus, and this year’s Nystagmus Awareness Day will take place on 20th June – the day before Aniridia Day! The Nystagmus Network have celebrated Wobbly Wednesday in November since 2013, but this year they have permanently … Continue reading

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PAX6 and the Cornea: An Eye to the Future

One of the speakers at this year’s conference was Thanos Papadimitropoulos from University of Liverpool. He told us about his team’s research, funded by Fight for Sight, into a potential new therapy that may one day be able to slow down or … Continue reading

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Call for Aniridia Network Ireland

By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading

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Just when you thought it was all over

You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading

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Presentations & Exhibition at Meeting 2016

After the morning riding tandems and playing VI cricket, the Aniridia Network UK Meeting 2016 moved to nearby Holy Trinity church. Sitting down to for lunch gave us all more opportunities to chat, meet up with and make new friends. “Meeting … Continue reading

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2016 Annual General Meeting

The Annual General Meeting of Aniridia Network UK was held at: Holy Trinity Church , Maldon Road, Wallington, SM6 8BL at 2:30pm 14 May  2016 Read the minutes of the ANUK 2016 AGM (pdf) Agenda ANUK AGM minutes 2015 to be agreed Matters … Continue reading

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Tandems and Cricket – Meeting 2016

The main Aniridia Network UK event of 2016 took place in Wallington, Surrey. In a change from our usual format, we spent the morning in a park. dry and clear, ideal for trying out tandem riding and visually impaired cricket. Lots of … Continue reading

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Serena and Violet with anirida and thier mums make friends

I met Dawn and Serena at an event held at Eureka Museum in Halifax aimed at visually impaired children. I recognised her from an Aniridia Network UK conference we had both attended in previous years, So at I approached her … Continue reading

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Review of Newcastle Conference 2015

By Sarah, part of the Conference committee  Preparing and planning Organising for a conference is a bit like making a large purchase. You do your research, ask people who can help and enlist the help of a fried or two, Once you … Continue reading

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Attending your first conference – it will be more positive than you think

By Heather B I attended an ANUK Conference for the first time in 2014. My daughter was diagnosed with aniridia at 5 weeks old, she is now 3 years old so I had managed to avoid the conference for 2 years. I knew … Continue reading

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