Tag Archives: Moorfields

Gene.Vision website about aniridia launched

Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading

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Posted in Aniridia Network news | Tagged , , , | 1 Comment

Research into aniridia symptoms link to genetics

Research has begun into whether the severity of aniridia can be linked to variations in genetics. The scientists need patients to take part. Dr Moosajee has been given money from the UCL Therapeutic Acceleration Award to document the medical history of … Continue reading

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£200,000 aniridia drug research, based and funded in the UK underway

Research into the growth of eyes with aniridia has begun, funded by Aniridia Network and two families in the UK. In 2018, for the first time, Aniridia Network excitedly partnered with Fight for Sight to offer a £15,000 grant for … Continue reading

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Posted in Aniridia Network news, Medical staff talking, Research | Tagged , , , , , , , , | 2 Comments

Orbit abseil fundraiser

Today I took a big leap to raise £1070 for aniridia. I abseiled 80 metres (262 feet) down the Orbit Tower in London. It was organised by Moorfields Eye Charity, and I was very keen to take on the challenge. … Continue reading

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System to measure treatment of Limbal stem cell deficency)

Scientists have established a system to measure the effectiveness of treatment for cornea disease in people with aniridia – caused by Limbal stem cell deficiency  (LSCD) This objective, standardised method allows the effect of a treatment on patients to be … Continue reading

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Returning to Moorfields for testing time

I just went for an appointment at Moorfields Eye Hospital for the first time in 15 years. When I became an adult and left London for university, Moorfields said I didn’t need to keep coming to them. Instead I could … Continue reading

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Posted in Patients' tales | Tagged , | 1 Comment