Tag Archives: introduction

Claire’s introduction

Living with a visual impairment all of my life and having to face a number of barriers I have come to be very passionate about making a difference and challenging the injustices faced by blind and partially sighted people. Which … Continue reading

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Sarah’s introduction

Sarah successfully stood for election to be an Aniridia Network UK trustee in 2012/13. She couldn’t be at the annual general meeting in person. This is the nomination statement she provided instead. I have aniridia. Over the years I have … Continue reading

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Andrew’s introduction

Andrew successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person because he was busy “in the process of making homemade bread and cakes with a bunch … Continue reading

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Nigel’s introduction

Nigel successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person. This is the nomination statement he provided instead. I have aniridia and grew up when aniridia … Continue reading

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Sinead’s introduction

Hi, my name is Sinead. I am 29 years old. I have aniridia, nystagmus, coloboma, and glaucoma. I am registered blind as I have only have 5% vision. I live in the Republic of Ireland and am the country’s first … Continue reading

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Katie’s introduction

I was born in 1983 with sporadic aniridia and also have nystagmus, cataracts, glaucoma and aniridic keratopathy. I am registered partially sighted. I live in Sheffield with my partner. My hobbies include ice skating, walking and reading.listening to audio books. I am/was … Continue reading

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James’s introduction

I’m James, a born (1979) and bred Londoner. I have sporadic aniridia. My vision is (6/24 6/36) and I’m a trustee for Aniridia Network UK. Continue reading

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Jenny’s introduction

I currently live in Devon with my guide dog Jaynie. I was born with aniridia as part of WAGR syndrome. I have most of the associated eye conditions that go with aniridia, including cataracts, glaucoma, nystamgus, corneal thickness/scarring and have … Continue reading

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Beth’s introduction

I was diagnosed with aniridia at 3 months old as I wouldn’t open themnfor the Dr when he did my checks just after I was born. In those days genetic testing wasn’t as advance and I was screened for Wilms … Continue reading

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