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Category Archives: Fundraising
400km in 1 day fundraising bike ride
Matt rode his bike 408 miles from London to Worcestershire and back again, in one day to raise money for Aniridia Network UK. He set out at sunrise and rode as the temperature soared to 40°C. He retuned 15 hours … Continue reading
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Golden wedding celebration fundraises £95
Being married for 50 years is an achievement. This is the milestone that my parents achieved in March this year. My father has aniridia (as to the best of our knowledge did his father), as did his brother. When my … Continue reading
Kids complete Mini Great North Run in aid of aniridia
Four children, one with aniridia took part in this years Mini Great North Run to raise funds for us. Their generous sponsors gave £525 via JustGiving plus a £100 cheque, for them completing the 1.5 kilometre challenge which is open to 3 … Continue reading
School girl bakes buns in aid of friend’s aniridia
By Natasha My daughter has aniridia. A girl at her school, not much older than Violet held a bun sale to raise money for a charity of my daughter’s choice. The girl arranged it all by herself, made all the posters to … Continue reading
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Mark’s 115km triathlon for ANUK
With your support Mark swam, cycled and ran 115 kilometres to raise £185 for Aniridia Network UK. He trained for the Cleveland Steelman triathlon earlier this month. It began with a 2,000m swim around a lake. Then straight out of the water … Continue reading
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Thanks to Dassault for technical donation
A big thank you to Dassault Systems for donating audio visual equipment to Aniridia Network UK. Tony and colleagues, working in Warrington took part in a challenge to buy an item for up to £200 for a charity. He remembered our … Continue reading
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Thousands raised for aniridia research and support
Hardy cyclists tackled a 100-mile bike ride to raise more than £10,000 for crucial eyesight-saving research, inspired by Ella a girl who has aniridia as part of WAGR syndrome and is also deaf. A 22-strong team, led by Ella’s dad … Continue reading
Researchers sell cakes to raise £115 in aid of ANUK
Researchers at University College London raised £115 for Aniridia Network UK by making and selling cakes. They had a cake stall in the common room of the UCL Institute of Ophthalmology which is attached to Moorfields Eye Hospital. Organiser Victoria is studying cornea … Continue reading
Take a (No) #IrisSelfie to raise awareness and funds for aniridia
We want to raise awareness of aniridia, help those who are visually impaired because of it, and support treatment research. So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / … Continue reading
Drug company donates £1,000 to ANUK
A global biopharmaceutical company has provided a donation to ANUK for which we are extremely grateful. PTC Therapeutics is the company that discovered and is developing ataluren for the treatment of disorders due to a genetic nonsense mutation. Approximately 20% of patients … Continue reading
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