Category Archives: Fundraising

Golden wedding celebration fundraises £95

Being married for 50 years is an achievement. This is the milestone that my parents achieved in March this year. My father has aniridia (as to the best of our knowledge did his father), as did his brother. When my … Continue reading

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Kids complete Mini Great North Run in aid of aniridia

Four children, one with aniridia took part in this years Mini Great North Run to raise funds for us. Their generous sponsors gave £525 via JustGiving plus a £100 cheque, for them completing the 1.5 kilometre challenge which is open to 3 … Continue reading

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School girl bakes buns in aid of friend’s aniridia

By Natasha My daughter has aniridia. A girl at her school, not much older than Violet held a bun sale to raise money for a charity of my daughter’s choice. The girl arranged it all by herself, made all the posters to … Continue reading

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Mark’s 115km triathlon for ANUK

With your support Mark swam, cycled and ran 115 kilometres to raise £185 for Aniridia Network UK. He trained for the Cleveland Steelman triathlon earlier this month. It began with a 2,000m swim around a lake. Then straight out of the water … Continue reading

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Thanks to Dassault for technical donation

A big thank you to Dassault Systems for donating audio visual equipment to Aniridia Network UK. Tony and colleagues, working in Warrington took part in a challenge to buy an item for up to £200 for a charity. He remembered our … Continue reading

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Thousands raised for aniridia research and support

Hardy cyclists tackled a 100-mile bike ride to raise more than £10,000 for crucial eyesight-saving research, inspired by Ella a girl who has aniridia as part of WAGR syndrome and is also deaf. A 22-strong team, led by Ella’s dad … Continue reading

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Researchers sell cakes to raise £115 in aid of ANUK

Researchers at University College London raised £115 for Aniridia Network UK by making and selling cakes. They had a cake stall in the common room of the UCL Institute of Ophthalmology which is attached to Moorfields Eye Hospital. Organiser Victoria is studying cornea … Continue reading

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Take a (No) #IrisSelfie to raise awareness and funds for aniridia

We want to raise awareness of aniridia, help those who are visually impaired because of it, and support treatment research. So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / … Continue reading

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Drug company donates £1,000 to ANUK

A global biopharmaceutical company has provided a donation to ANUK for which we are extremely grateful. PTC Therapeutics is the company that discovered and is developing ataluren for the treatment of disorders due to a genetic nonsense mutation. Approximately 20% of patients … Continue reading

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Change to how you can help ANUK by shopping on Amazon

There is an easy ways to raise money for us simply by shopping on Amazon.co.uk. It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading

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