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Category Archives: Patients’ tales
Lois recognised for cricket skills
Lois, who has aniridia has been “recognised and commended for her cricketing, determination and courage” at a recent awards evening. She has benefited from Street Chance a charity initiative to get disadvantaged young people playing cricket and so “increase aspiration, promote mutual respect, … Continue reading
Protected: Jenny’s career – Part 3: First interview
There is no excerpt because this is a protected post.
Paralympians with aniridia
The most decorated paralympian ever has aniridia. She and at least two athletes who have aniridia were at the London 2012 Paralympics. There might also have been a runner and a physiotherapist with aniridia too. Most decorated Trischa Zorn from … Continue reading
James @ National Institutes of Health
Introduction Earlier this year I travelled to the USA to take part in medical research related to aniridia. It and the accompanying holiday was a very special experience. Background National Institutes of Health The National Institutes of Health in the … Continue reading
Combating overhaning branches
I’ve got an idea in my head to do something about plants that obstruct the pavement. I’m fed up with ducking, flinching or actually getting scratched by the branches or leaves of things growing in people’s front gardens. That’s my … Continue reading
Unveiling the aniridia visor
Two baseball caps put together to block bright floors as well as sun. Continue reading
A&E – Aniridia & Emergency: The bad
One day sometime in December 2009, while studying at university, I was walking to town with my flatmate Hannah. I suddenly realised my vision had completely dropped. Everything was completely blurry and i couldn’t see anything clearly at all. All … Continue reading
A&E – Aniridia & Emergency: The good
So you know we with aniridia just love to keep everyone on their toes and love to be unique and confuse poor medical staff?! Well here’s my latest adventure story … I was in the middle of a busy week … Continue reading
Carrying the Olympic Torch: My moment to shine
Several months ago I had the honour of being nominated by the RNIB for the work I had done in my role as a Volunteer Campaign Co-ordinator to be a torchbearer for the London 2012 Olympics. I was chosen! Finally … Continue reading
Claire’s introduction
Living with a visual impairment all of my life and having to face a number of barriers I have come to be very passionate about making a difference and challenging the injustices faced by blind and partially sighted people. Which … Continue reading
