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Category Archives: Medical staff talking
Attending the 8th European Aniridia Conference as a professional
Nicky, an ophthalmology registrar and PhD student, attended the 8th European Aniridia Conference in Sofia, Bulgaria, thanks to Aniridia Network’s support. The three-day event brought together clinicians, researchers, and families to discuss various aspects of aniridia, while incorporating patient experiences into the dialogue. Notable discussions included cutting-edge research on stem cells and targeted therapies for aniridia-associated keratopathy, showcasing promising developments. Nicky valued the chance to connect with global researchers, exchanging ideas that could enhance current and future projects. Overall, the conference inspired Nicky to provide more tailored support to patients moving forward. Continue reading
Posted in International, Medical staff talking
Tagged Aniridia Europe, Conference, European Aniridia Conference, event
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Management of glaucoma associated with aniridia
Talk by Mr John Brookes, Moorfields Eye Hospital, at Conference 2025 A presentation about aniridia issues, particularly regarding how glaucoma is treated in children and adults with aniridia, from medical to laser and surgery. Mr Brookes trained in London and … Continue reading
Posted in Medical staff talking
Tagged Conference, Conference 2025, event, glaucoma, John Brookes, meeting
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Conference 2025
“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading
Posted in Aniridia Network news, Medical staff talking, Patients' tales, Research
Tagged Conference, Conference 2025, event, meeting
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WAGR Weekend 2025
Several of our members affected by WAGR enjoyed meeting in Sussex recently Parents Aaron and Michelle brilliantly organised the 2 day event with International WAGR Syndrome Association (IWSA). Aniridia Network trustee James went along to speak with people and fly our flag. Nearly everyone with WAGR has aniridia. Continue reading
Posted in Medical staff talking, Other agencies, Research
Tagged event, IWSA, Mariya Moosajee, Ngozi Oluonye, WAGR
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3D corneal organoids for disease modelling and limbal stem cell deficiency cell therapy research
Dulce Lima Cunha is a postdoctoral researcher from UCL Institute of Ophthalmology, currently working at Radboud University in the Netherlands. Currently, her main research interests are uncovering rare disease mechanisms using induced pluripotent stem cell (iPSC)-derived 2D and 3D models … Continue reading
Posted in Medical staff talking, Research
Tagged Conference, Conference 2024, cornea, Dulce Lima Cunha, Limbal stem cells, research
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Retinal detachments in Aniridia research at Moorfields
Vivienne Kit is an Ophthalmology Researcher at UCL Institute of Ophthalmology. In addition to her clinical duties, she is pursuing a postgraduate research degree in aniridia under the supervision of Professor Mariya Moosajee. In 2021, Vivienne and her team published … Continue reading
Posted in Medical staff talking, Research
Tagged Conference, Conference 2024, Moorfields, PAX6, research, retinal detachment, Vivienne Kit
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Progress on developing eyedrops to treat aniridia-associated keratopathy
Professor Martin Collinson is based at The Institute of Medical Sciences in the University of Aberdeen, and has been working on the roles of the PAX6 gene in eye development and adult life for over 25 years. He enjoys opportunities to … Continue reading
Posted in Medical staff talking, Research
Tagged Conference, Conference 2024, cornea, keratopathy, Martin Collinson, PAX6, research
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Conference 2024
We held this great event online and it was completely FREE to attend. We had a great line up of speakers, to talk about aniridia related themes. From personal experiences to cutting edge research, education and leadership – something for … Continue reading
Thanks to our retiring Medical Adviser Melanie Hingorani
Our long-time go-to for all medical queries, Melanie Hingorani, has retired from working as a consultant at Moorfields Eye Hospital and with us too. Her career had a focus on engagement and quality in eye healthcare, including answering our members’ … Continue reading
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