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Tag Archives: nystagmus
Nystagmus Network & Awareness Day
Many people with aniridia also have nystagmus, and this year’s Nystagmus Awareness Day will take place on 20th June – the day before Aniridia Day! The Nystagmus Network have celebrated Wobbly Wednesday in November since 2013, but this year they have permanently … Continue reading
Posted in Campaigns
Tagged conference, conference 2018, nystagmus, nystagmus network
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Glen’s story of aniridia and nystagmus
Glen has made marvellous videos about how his visual impairment due to aniridia and nystagmus affects him. He’s also produced a written versions entitled ‘Life With Aniridia‘ and ‘Life With Nystagmus‘. These are just two of many fantastic posts about disability on Glen’s … Continue reading
Aniridia and Nystagmus meetings in Leicester on 28 June 2014
4:30pm, Lounge Bar, Mercure Leicester The Grand Hotel, Granby Street, Leicester, LE1 6ES IMPORTANT TO RSVP: meetup@aniridia.org.uk Anyone affected by aniridia, including relatives are invited to join us in Leicester to find out more about each other and discuss aniridia … Continue reading
Posted in ANUK news, Other agencies
Tagged meetup, nystagmus, nystagmus network, university of leicester
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Heather’s story of an American in London
Read the first part of this article by Heather written for the Nystagmus Network and published in the 100th edition of their newsletter Focus in October 2013. When my company relocated me to London in 2011 to start their European technical support … Continue reading
Heather’s story of growing up with aniridia in the USA
My name is Heather and I am a 29 year old American. I work as a solutions analyst at a software company completing special projects for our Chief Technology Officer. In 2011 my company transferred me from the USA to … Continue reading
Meet-up in Bristol on 5 October 2013
4:30pm, Terrace Bar/Coffee Shop, Bristol City Centre Marriot Hotel, 2 Lower Castle Street, Old Market, Bristol, BS1 3AD RSVP: meetup@aniridia.org.uk Anyone affected by aniridia, including relatives are invited to join us in Bristol to find out more about each other … Continue reading
Posted in ANUK news, Other agencies, Parents' accounts, Patients' tales
Tagged meetup, nystagmus, nystagmus network
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Patients needed for research into if nystagmus slows down sight
A growing body of evidence suggests that people with nystagmus need more time to see the world around them than those with ordinary vision. However, existing sight tests for distance vision take no account of response times and are a … Continue reading
Answer the Impact of nystagmus questionnaire
83% of people with aniridia also have nystagmus (‘wobbly eyes’). It is a factor in how much vision these people have. Here is an opportunity to contribute to research in to nystagmus. Nystagmus affects quality of life in all sorts … Continue reading
Posted in Research
Tagged nystagmus, nystagmus network, research, university of leicester
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Watching TV
Recently a parent put the photograph below on Facebook and asked “Does anyone with or child with aniridia sit this close to the TV to watch it?” There was a great set of responses, from all over the world, which … Continue reading
