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Category Archives: Aniridia Network news
Meet-ups in Blackpool and London in October
Whether you’re an aniridia patient, caregiver, researcher, educator or doctor, join us to talk about it in Blackpool and London. Continue reading
Annual Report 2025-2026
Read details of what our officials, members and supporters did as well our finances between April 2025 and March 2026 in the latest Aniridia Network Annual Report Continue reading
Annual General Meeting 2026
The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, will be held online on 28/11/2026. Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2025, meeting, trustees
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Meet-ups for Rare Disease Day 2026
We held 4 friendly online/in-person gatherings of patients and their relatives to celebrate Rare Disease Day 2026. London Euston Station: Starbucks: Aaron, Johnathan, Keith, James, Emily and children Cambridge: M&S Food Cafe, Market Hill: Tony, Andy, Laura, Anastasia and children … Continue reading
Bursary for UK professionals to attend European Aniridia Conference 2026
Aniridia Network is offering to fund UK professionals to take part in this year’s European Aniridia Conference (EAC), 17-19 April in Sofia, Bulgaria. EAC enables the sharing of scientific knowledge about the rare genetic eye condition aniridia. Its goal is … Continue reading
Posted in Aniridia Network news, Research
Tagged European Aniridia Conference, grant
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Grow your skills, meet new people and help the aniridia community
Are you or someone you know: affected by aniridia? keen to work better with people to achieve success? willing to help enhance the lives of people affected by aniridia? If ‘Yes’: Come to Bulgaria in April 2026 for the ‘European Aniridia … Continue reading
Conference 2025
“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading
Posted in Aniridia Network news, Medical staff talking, Patients' tales, Research
Tagged Conference, Conference 2025, event, meeting
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Annual General Meeting 2025
The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, was held online on 1/11/2025. Read minutes and watch a video. Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2025, meeting, trustees
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2025 Volunteer Awards
We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our … Continue reading
Annual Report 2024-2025
Read details of what our officials, members and supporters did as well our finances between 1 April 2024 and 31 March 2025 in the Aniridia Network Annual Report for 2024/25. Key points After a year with none, 2 people did fundraising … Continue reading
