Author Archives: Aniridia Network

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.

2nd hand clothes on sale in aid of aniridia

A boutique selling second hand clothes is donating its profits to Aniridia Network. Feel Good Fashion takes in preloved clothes and sells them on, aiming to reduce waste. The proceeds are split: 40% to the previous owner, 40% to the … Continue reading

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Golf competion raffles raise £1000

The Tidworth Garrison Golf Club runs an annual open competition for seniors, and alongside it a fundraising raffle. For the past 2 years Vice Captain John has arranged for it to be in aid of aniridia. His 4 year granddaughter … Continue reading

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Katie: Judo Paralympian with aniridia

To show what’s possible for a person with aniridia, we checked in with one competing in judo at the Tokyo Paralympics. Meet Katie, part of Team USA. I’m Katie Davis from Sacramento California. I was born with aniridia and nystagmus, … Continue reading

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Amanda: Goalball Paralympian with aniridia

To demonstrate the amazing things a person with aniridia can achieve, we interviewed one competing at their 3rd Paralympics in Tokyo. Amanda is part of Team USA, hoping to better her USA Women’s Goalball team’s bronze medal won in 2016. … Continue reading

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Tricia’s fundraising hike up Snowdon

Tricia was motivated to raise mone for Aniridia Network by her 8 year old granddaughter. Olivia is a very bright fun loving child with sporadic aniridia. Her plan was to get sponsored to walk up and down Snowdon; the highest … Continue reading

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Annual Report 2020-2021

Read what our officials, members and supporters did and about our finances last year in the Aniridia Network Annual Report for 2020/21. Continue reading

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Sunglasses Day raises shade over £30

A class of children has collected £30.10 for Aniridia Network by holding a sunglasses day. Zinovia, who has aniridia and her 8 year old classmates at Milton CofE Primary School brought in a donation and funky glasses this week, as … Continue reading

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Bernie and Abbie interview each other

Mother and daughter with aniridia decided to ask each other questions on camera about their lives to celebreate Aniridia Day 2021 Abbie has made other videos about aniridia and other aspects of her life, check them out. To take part … Continue reading

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Review of our achievements since last Aniridia Day

To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading

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Members + Supporters clarification and data check

As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading

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