Author Archives: Aniridia Network

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.

Meet ups for Aniridia Day 2022

Five gatherings of people affected by aniridia were held around the UK to celebrate this, Aniridia Day. Adults with aniridia hosted the get-togethers. Fellow patients, parents, children, came along to chat about life with our condition. Aniridia Network also bought … Continue reading

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Newcastle meet up 9 July 2022

Don’t miss these opportunities to chat in person with people the north east, affected by aniridia. An adults with aniridia is holding a get-togethers in Newcastle. Fellow patients, parents, children, professionals and others all should come along to chat about … Continue reading

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2022 Annual General Meeting

The Aniridia Network AGM will be held online on 13 August 2022 Continue reading

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Book review: ‘Auditory Processing Disorder’ by Alyson Mountjoy

This book is written for parents and adults with APD, plus educational and medical professionals. Auditory Processing Disorder (APD) affects many people with aniridia. This book provides a lot of insight into the condition. It was published in March 2021 … Continue reading

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2021 Volunteer Awards

We would be nothing without the amazing people who give up their time and use their skills to run our charity. We are extremely grateful for all our volunteer’s efforts and what they achieve from them for our beneficiaries. To … Continue reading

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2nd hand clothes sold in aid of aniridia

A boutique selling second hand clothes donated £456 of its profits to Aniridia Network. Feel Good Fashion takes in preloved clothes and sells them on, aiming to reduce waste. The proceeds are split: 40% to the previous owner, 40% to … Continue reading

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Golf competion raffles raise £1000

The Tidworth Garrison Golf Club runs an annual open competition for seniors, and alongside it a fundraising raffle. For the past 2 years Vice Captain John has arranged for it to be in aid of aniridia. His 4 year granddaughter … Continue reading

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Katie: Judo Paralympian with aniridia

To show what’s possible for a person with aniridia, we checked in with one competing in judo at the Tokyo Paralympics. Meet Katie, part of Team USA. I’m Katie Davis from Sacramento California. I was born with aniridia and nystagmus, … Continue reading

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Amanda: Goalball Paralympian with aniridia

To demonstrate the amazing things a person with aniridia can achieve, we interviewed one competing at their 3rd Paralympics in Tokyo. Amanda is part of Team USA, hoping to better her USA Women’s Goalball team’s bronze medal won in 2016. … Continue reading

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Tricia’s fundraising hike up Snowdon

Tricia was motivated to raise mone for Aniridia Network by her 8 year old granddaughter. Olivia is a very bright fun loving child with sporadic aniridia. Her plan was to get sponsored to walk up and down Snowdon; the highest … Continue reading

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