Tag Archives: sleep

Young people with aniridia needed for sleep research

Scientists want adolescents and young adults to take part in a study to learn more about how an aniridia-related gene affects sleep. Are you the kind of person they are recruiting? aged 10 to 20 years old with aniridia medically stable … Continue reading

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Posted in National Institute for Health WAGR study, Research | Tagged , , , | Leave a comment

Review of 2013 Make a Miracle Conference and Social

By Veronica van Heyningen The 2013 meeting of Aniridia Foundation International (AFI) was held in Charlottesville Virginia, USA, at the beginning of August.  Many of you may be beginning to take for granted the format of these meetings with patients and … Continue reading

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Melatonin and sleep

Katie has recorded some points about melatonin, a supplement which some people with aniridia and other conditions use to aid their sleep. Note: Katie referred to the pituitary gland when she meant the pineal gland. Jenny has previously told her … Continue reading

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Trying to obtain melatonin

During my visit to the National Institute For Health (NIH) in 2009 to participate in the WAGR/11p Deletion Syndrome research, one of the findings was that I had a smaller than average pineal gland. The NIH research and previous studies … Continue reading

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Posted in Patients' tales | Tagged , , , | 1 Comment