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Tag Archives: conference 2018
Reviews of Conference 2018
People at the Aniridia Network Conference 2018 said: “It gave an opportunity to learn about different aspects of aniridia. It made me feel like I really belonged there.” Meeting lots of people and having a good variety of speakers made it … Continue reading
Responses to feedback about Conference 2018
Thank you for all the excellent feedback about this years conference. We will certainly try to put in place many of the suggestions that were made. We will publish the survey results shortly. There were some points made, that we … Continue reading
Liz’s Aniridia Network Conference 2018
Intense but recommended: Liz’s account of Aniridia Network Conference 2018, the first time she come to such an event. Continue reading
Fern Lulham – Living with Aniridia
We were delighted to welcome motivational speaker Fern Lulham to the Aniridia Network Conference 2018 in April. She gave a very uplifting presentation about her life with aniridia, which got a very positive reaction from the audience. She also took … Continue reading
Nystagmus Network & Awareness Day
Many people with aniridia also have nystagmus, and this year’s Nystagmus Awareness Day will take place on 20th June – the day before Aniridia Day! The Nystagmus Network have celebrated Wobbly Wednesday in November since 2013, but this year they have permanently … Continue reading
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Tagged conference, conference 2018, nystagmus, nystagmus network
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PAX6 and the Cornea: An Eye to the Future
One of the speakers at this year’s conference was Thanos Papadimitropoulos from University of Liverpool. He told us about his team’s research, funded by Fight for Sight, into a potential new therapy that may one day be able to slow down or … Continue reading