Tag Archives: event

Meet ups for Aniridia Day 2022

Five gatherings of people affected by aniridia were held around the UK to celebrate this, Aniridia Day. Adults with aniridia hosted the get-togethers. Fellow patients, parents, children, came along to chat about life with our condition. Aniridia Network also bought … Continue reading

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Newcastle meet up 9 July 2022

Don’t miss these opportunities to chat in person with people the north east, affected by aniridia. An adults with aniridia is holding a get-togethers in Newcastle. Fellow patients, parents, children, professionals and others all should come along to chat about … Continue reading

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Scotland & London Meet-Ups

This month we held 2 successful meet-ups in different parts of the UK, bringing together a variety of people affected by aniridia. In the north we were proud to hold our first ever event in Scotland, when trustee Eleanor Burke … Continue reading

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Haya’s journey to an aniridia conference

My name is Haya. People are often curious in what I do and how I got to university with developmental delays. They ask me what my hobbies and interests are and the general questions that you ask a person in … Continue reading

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Five go to Paris for European Conference on Aniridia 2018

Five members of Aniridia Network travelled to Paris for a conference about the science and treatment of aniridia. They met the world’s top experts on aniridia and learned about their latest research and techniques. They also took part in a … Continue reading

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London meet-up 2017

This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading

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First aniridia meeting in Ireland review

The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading

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First aniridia meeting in Ireland

Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading

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London meet-up 2016

We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading

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Call for Aniridia Network Ireland

By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading

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Posted in Aniridia Network news, Patients' tales | Tagged , , , | 3 Comments