Tag Archives: event

First aniridia meeting in Ireland

Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , | 3 Comments

London meet-up 2016

We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading

Rate this:

Posted in ANUK news | Tagged , , | Leave a comment

Call for Aniridia Network Ireland

By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading

Rate this:

Posted in ANUK news, Patients' tales | Tagged , , , | 2 Comments

Just when you thought it was all over

You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading

Rate this:

Posted in ANUK news | Tagged , , | 1 Comment

Presentations & Exhibition at Meeting 2016

After the morning riding tandems and playing VI cricket, the Aniridia Network UK Meeting 2016 moved to nearby Holy Trinity church. Sitting down to for lunch gave us all more opportunities to chat, meet up with and make new friends. “Meeting … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , , | Leave a comment

Serena and Violet with anirida and thier mums make friends

I met Dawn and Serena at an event held at Eureka Museum in Halifax aimed at visually impaired children. I recognised her from an Aniridia Network UK conference we had both attended in previous years, So at I approached her … Continue reading

Rate this:

Posted in Parents' accounts, Uncategorized | Tagged , , | Leave a comment

London meet up 2015

We’re had an informal get together in Kensington on today. Ten people came along to for coffee and chat about aniridia. This included people of all ages who have it and parents of those who do. It was held as a … Continue reading

Rate this:

Posted in ANUK news | Tagged , | Leave a comment

Attending your first conference – it will be more positive than you think

By Heather B I attended an ANUK Conference for the first time in 2014. My daughter was diagnosed with aniridia at 5 weeks old, she is now 3 years old so I had managed to avoid the conference for 2 years. I knew … Continue reading

Rate this:

Posted in Patients' tales | Tagged , , , | Leave a comment

Meet-up in Newcastle

From 5pm 9 May 2015 Rendezvous Bar, County Hotel, Neville Street, Newcastle-Upon-Type, NE1 5DF Everyone affected by aniridia: patients, relatives, doctors, teachers etc was invited to join us in to find out more about each other and discuss aniridia related topics. … Continue reading

Rate this:

Posted in ANUK news, Other agencies | Tagged , | Leave a comment

Milton Keynes meet-up

We met on met to discuss aniridia and celebrate Rare Disease Day 2015 at Whetherspoons at XScape, Milton Keynes. We had a great evening talking about dealing with school, doctor and even being a stuntman while having aniridia. If you want to meet more … Continue reading

Rate this:

Posted in ANUK news | Tagged , | Leave a comment