What funding is used for

We like to be transparent about how we use the money we receive.

The main ways our funds are spent include:

  • organising supportive events for patients, parents and professionals, to share experiences and knowledge.
  • grants for research into sight-saving treatments for aniridia and related conditions
  • information leaflets: to raise awareness of aniridia and to tell patients and parents about the support we provide.

We are a small organisation and use free tools whenever possible but we still have regular running costs, these include:

  • email/print newsletter, website and postage
  • travel to meetings events: while we work online a lot, our officials still need to get together sometimes and also go to events to meet peers and receive training or take part in initiatives.
  • subscriptions to services and organisations that help us work effectively, such as Quickbooks, JustGiving, Aniridia Europe.

With more funds we would love to do more and do it even better.

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