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Tag Archives: Cardiff University
Research Preview: What is the impact on family members of aniridia diagnosis in a child?
During our online meetup earlier this year to mark Aniridia Day and Father’s Day, we were given a preview of an important new research project. Harriet, an MSc Genetic Counselling student from Cardiff University, is preparing to conduct a study … Continue reading
Posted in Parents' accounts, Patients' tales, Research
Tagged Aniridia Day, Cardiff University, event, meeting
1 Comment
Results of research into the impact of sight loss between adults with sporadic and familial aniridia
Helen Campbell has recently finished studying for her MSc in Genetic and Genomic Counselling at Cardiff University School of Medicine, and works as an Eye Care Liaison Officer (ECLO) for RNIB. Prior to that, she worked in the charity sector … Continue reading
Posted in Patients' tales, Research
Tagged Cardiff University, Conference, Conference 2024, Helen Campbell, psychosocial, research
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‘Knowing that you’re not on your own’: Research into internet use by people with aniridia
A researcher has found that for people with aniridia, being online, in relation to their condition is: transformational empowering liberating gave a feeling of solidarity and is ever evolving During the past year, a Cardiff University masters student studied the … Continue reading
Posted in Patients' tales, Research
Tagged Cardiff University, Conference, Conference 2023, social media
1 Comment
Further sight loss with aniridia research: participants wanted
People with aniridia are needed for a research study about worsening sight, whether you have dealt with it or may do in future. Aniridia usually results in low vision from birth. At some point conditions such as cataracts, glaucoma or … Continue reading
Posted in Medical staff talking, Research
Tagged Cardiff University, Helen Campbell, psychosocial, research
2 Comments
Internet & social media research study: participants wanted
Emily Sterling, a Masters student from the Cardiff University Centre of Medical Education, is looking for adults with aniridia to take part in a research study about their use of the internet and social media. Emily has provided the information … Continue reading
