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Category Archives: Aniridia Network news
Change to how you can help ANUK by shopping on Amazon
There is an easy ways to raise money for us simply by shopping on Amazon.co.uk. It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading
Invitation to aniridia youth summer camp 2015 in Italy
Registration deadline 1 February 2015 Aged 15-25 and have aniridia? Parent or sibling of such a person? You are invited to a fabulous activity holiday in Italy with 80 others from around Europe. The camp will run 4-14 August 2015 and will … Continue reading
Posted in Aniridia Network news, Other agencies
Tagged Aniridia Europe, event, Youth In Action Summer Camp
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Marina wins £250 in our Christmas raffle
The first Aniridia Network UK nationwide raffle took place in November. Congratulations to Marina in London who scooped the prize of £250 worth of Love 2 Shop vouchers.. Marina is mum to young Cormac who has sporadic aniridia. Liz, our Fundraising … Continue reading
Aniridia and Nystagmus meetings in Leicester on 28 June 2014
4:30pm, Lounge Bar, Mercure Leicester The Grand Hotel, Granby Street, Leicester, LE1 6ES IMPORTANT TO RSVP: meetup@aniridia.org.uk Anyone affected by aniridia, including relatives are invited to join us in Leicester to find out more about each other and discuss aniridia … Continue reading
Posted in Aniridia Network news, Other agencies
Tagged meetup, nystagmus, nystagmus network, university of leicester
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Annual Report & Accounts 2013/14
We hope that you have been keeping up to date with what has been going on for Aniridia Network UK (ANUK) through the newsletters that we send out during the year. To summarise those and add insight into what happens … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, Conference, Conference 2014, meeting, trustees
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Cornea Connect brings researchers and patients together
Researchers into aniridic keratopathy held a event so they could meet people affected by the condition so they could learn about each other. Corneal opacification affects people with aniridia because of deficiencies in the eye’s limbal stem cells. The Cells … Continue reading
Posted in Aniridia Network news, Other agencies, Patients' tales, Research
Tagged Limbal stem cells
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Join our trustee team for 2014/15
Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t take it for granted that others will do it all or even as well as you could. We’re seeking … Continue reading
Notice of 2014 Annual General Meeting
Notice is hereby given that the Annual General Meeting of Aniridia Network UK will be held at: Armada House, Telephone Avenue, Bristol, BS1 4BQ at 15.30pm on 7 June 2014 to transact the following business. Agenda Minutes of the previous … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Our Patron’s Life Scientific on Radio 4
Aniridia Network UK’s Patron, Veronica Van Heyningen, was the subject of the BBC Radio 4 programme Life Scientific today. The half hour interview explored her love of research, particularly on the aniridia and the PAX6 gene plus her contribution to … Continue reading
Posted in Aniridia Network news, Medical staff talking, Research
Tagged media, Patron, Veronica
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Youth With Aniridia In Europe summer camp 2015
A summer camp in north east Italy for young people with aniridia across Europe is being organised. You can be involved with this exciting event The camp will be in summer 2015 in a national park in the Venetia region … Continue reading
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