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Category Archives: Aniridia Network news
Notice of 2014 Annual General Meeting
Notice is hereby given that the Annual General Meeting of Aniridia Network UK will be held at: Armada House, Telephone Avenue, Bristol, BS1 4BQ at 15.30pm on 7 June 2014 to transact the following business. Agenda Minutes of the previous … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
2 Comments
Our Patron’s Life Scientific on Radio 4
Aniridia Network UK’s Patron, Veronica Van Heyningen, was the subject of the BBC Radio 4 programme Life Scientific today. The half hour interview explored her love of research, particularly on the aniridia and the PAX6 gene plus her contribution to … Continue reading
Posted in Aniridia Network news, Medical staff talking, Research
Tagged media, Patron, Veronica
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Youth With Aniridia In Europe summer camp 2015
A summer camp in north east Italy for young people with aniridia across Europe is being organised. You can be involved with this exciting event The camp will be in summer 2015 in a national park in the Venetia region … Continue reading
Walk through London at night raises £742 for aniridia research
I’m a reasonably happy walker. Five miles or so can be very pleasant on a nice day. Also, I know people who’ve done the Moonwalk for breast cancer, who I didn’t think were necessarily much fitter than I was, at least with the … Continue reading
Posted in Aniridia Network news, Fundraising, Research
Tagged Fight For Sight, fundraising
1 Comment
£500 donation from 200 mile bike ride
A huge thank you to parents Caryl and Tristan for a £500 donation resulting from taking part in a 200 mile charity bike ride from Caernarfon to Cork. It will make it possible for us to print leaflets for hospitals … Continue reading
Collection at Catterick nets £419 for ANUK
Today Aniridia Network UK Fundraising Officer Liz and her relatives put on ANUK t-shirts and took collecting buckets to the Sunday market at Catterick Racecourse in Yorkshire. Shoppers give their change as they leave the market. The day was sunny … Continue reading
Meet-up in Bristol on 5 October 2013
4:30pm, Terrace Bar/Coffee Shop, Bristol City Centre Marriot Hotel, 2 Lower Castle Street, Old Market, Bristol, BS1 3AD RSVP: meetup@aniridia.org.uk Anyone affected by aniridia, including relatives are invited to join us in Bristol to find out more about each other … Continue reading
Posted in Aniridia Network news, Other agencies, Parents' accounts, Patients' tales
Tagged meetup, nystagmus, nystagmus network
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£1,000 donation from Ride London team
We had a £1000 donation from “the Fairy Queen Dream Team”, who completed the RideLondon-Surrey 100 cycling event today. The team was headed up by James, father of Ella who has WAGR/11p Deletion Syndrome. They were primarily raising funds for … Continue reading
1 tweet reaps new member, volunteer and website for ANUK
I monitor the internet for mentions of ‘aniridia’. Last week Phil from Liverpool tweeted that his wife, who has aniridia, had been declared ineligible for Personal Independent Payments. I checked our database and found no record of her. So I … Continue reading
Cakes, car washes and stocks at RNC/ANUK fundraiser
On the 1 and 2 July 2013, Rosie, Megan and I joined together as a group to raise money for Aniridia Network UK and our further education college RNC (Royal National College for the Blind). Over the 2 days, we held 3 events which … Continue reading
