Anyone affected by aniridia, including relatives are invited to join us in Leicester to find out more about each other and discuss aniridia related topics. Katie and Andrew, two adults with sporadic aniridia will be your hosts.
We are holding a free aniridia meet-up immediately after the Nystagmus Network Open Day also taking place in the Mercure Leicester hotel.
Keith, who came to a previous meet up in London said about it: “In one evening, I learnt so much. For the first time felt I have peers who understand my condition – in many cases a hell of a lot better than I do. For the first time I felt supported.”
This is a fringe event of the Nystagmus Network Open Day which is described as “your chance to talk to people of all ages who have nystagmus, are parents of children with nystagmus or have a professional interest in nystagmus as teachers, orthoptists, optometrists, rehab workers, etc.”
“You can speak to medics, researchers and other professionals in an informal setting. Leicester University and the Leicester Royal Infirmary are home to probably the biggest nystagmus research team in the UK”
ANUK encourage you to also book a place at the Open Day. but you can come to just our meet-up if you want.
The aniridia meet-up will be a relaxed social event. Children are welcome. The hotel is a couple of minutes walk from Leicester train station. It is free to attend. You can buy your own food and drinks at the bar as you wish.
If you have any questions or need help joining the group on the day contact Katie on 07792 867 949.
If you want to come, email email@example.com as soon as possible so we know how large a space to reserve and in case any of the arrangements change. We’ll put up some signs with our logo to advertise our table. We’re looking forward to meeting you.
If you can’t come, how about organising a meet-up of your own? There’s a real appetite around the country for get togethers – it just needs someone to set a good time and place. Even better make it a fun and fundraising activity for ANUK too! Contact us for details of how we can help you make it happen near you.