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Author Archives: Aniridia Network
Changing our name
We are planning to change our name! We intend to drop the ‘UK’ and simply be ‘Aniridia Network’. The main reason is to be inclusive for people affected by aniridia in Ireland, and there are other benefits too. We want … Continue reading
Attending the Genetic Alliance Conference 2017
Today Genetic Alliance held their Annual Conference in London, entitled “Upskilling Our Members”, with many charities taking part. Aniridia Network trustee James Buller attended the event, taking the opportunity to engage with many leaders of charities very similar to our … Continue reading
New Treasurer and bank
We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading
400km in 1 day fundraising bike ride
Matt rode his bike 408 miles from London to Worcestershire and back again, in one day to raise money for Aniridia Network UK. He set out at sunrise and rode as the temperature soared to 40°C. He retuned 15 hours … Continue reading
Aniridia poem competition UK results
We are elated to announce the winner plus the awarding of a special prize in our Aniridia Day related poetry competition. “I was impressed with the outstanding talent.” said judge and new trustee Emily. We were delighted to receive 10 … Continue reading
Posted in Campaigns, Parents' accounts, Patients' tales
Tagged Aniridia Day, AniridiaPoem
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Golden wedding celebration fundraises £95
Being married for 50 years is an achievement. This is the milestone that my parents achieved in March this year. My father has aniridia (as to the best of our knowledge did his father), as did his brother. When my … Continue reading
Win up to £40 in the aniridia poetry competition
Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading
Launch of Aniridia Day: 21 June 2017
Join us celebrating the first ever international Aniridia Day on 21st June 2017! What is it? It will be a exciting time to coordinate activities and improve understanding of the rare genetic eye condition aniridia. Please take part in the campaigns: … Continue reading
Annual Report 2016-2017
Details of what our officials did between April 2016 and March 2017 are in the ANUK Annual Report 2016-17. There is also the ANUK Financial Report 2016-17.
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, meeting
Comments Off on Annual Report 2016-2017
First aniridia meeting in Ireland review
The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading
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