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Author Archives: Aniridia Network
Fern Lulham – Living with Aniridia
We were delighted to welcome motivational speaker Fern Lulham to the Aniridia Network Conference 2018 in April. She gave a very uplifting presentation about her life with aniridia, which got a very positive reaction from the audience. She also took … Continue reading
Half Marathon Fundraiser
Katja Lumezi’s daughter Tina was born with aniridia, and from the moment she was diagnosed they have received “immensely valuable” support from the Aniridia Network and Moorfields Eye Hospital. To show their gratitude, Katja ran the Hackney Half Marathon on … Continue reading
Nystagmus Network & Awareness Day
Many people with aniridia also have nystagmus, and this year’s Nystagmus Awareness Day will take place on 20th June – the day before Aniridia Day! The Nystagmus Network have celebrated Wobbly Wednesday in November since 2013, but this year they have permanently … Continue reading
Paul, aniridia and sports
I was born with aniridia and did the usual sports at comprehensive school. I was the only disabled person there never mind the only visually impaired pupil there. I never really liked playing rugby, football or cricket for the obvious … Continue reading
PAX6 and the Cornea: An Eye to the Future
One of the speakers at this year’s conference was Thanos Papadimitropoulos from University of Liverpool. He told us about his team’s research, funded by Fight for Sight, into a potential new therapy that may one day be able to slow down or … Continue reading
Annual General Meeting 2018
The first Annual General Meeting of Aniridia Network, a charitable incorporated organisation was held at: Resource For London, 356 Holloway Road, London, N7 6PA on 14 April 2018 at 11:00am Continue reading
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Tagged AGM, Annual General Meeting, charity, meeting, registration
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Annual Report 2017-2018
Details of what our officials did between April 2017 and March 2018 are in the Aniridia Network Annual Report 2017-18. There is also the Aniridia Network Financial Reports 2017-18. These were presented at the Annual General Meeting on 14 April … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, meeting
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Our first grant for UK research into aniridia
We are thrilled to announce a grant for research into aniridia! Aniridia Network UK has partnered with charity Fight For Sight to each contribute half the money to a £15,000 grant. The money is only available to UK academic or medical institutions. Get more … Continue reading
Charity registration achieved
From today Aniridia Network has full charity status. This is excellent and exciting! It means we have more potential to get funds and support, leading towards being able to do much more. Previously we were only registered with HMRC as a charity … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, charity, meeting, registration
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Toys for visually impaired children
It is not always easy to know what toys to buy a child with a visual impairment, so here are some thoughts and ideas to help you. Continue reading
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