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Author Archives: Aniridia Network
Launch of Aniridia Day: 21 June 2017
Join us celebrating the first ever international Aniridia Day on 21st June 2017! What is it? It will be a exciting time to coordinate activities and improve understanding of the rare genetic eye condition aniridia. Please take part in the campaigns: … Continue reading
Annual Report 2016-2017
Details of what our officials did between April 2016 and March 2017 are in the ANUK Annual Report 2016-17. There is also the ANUK Financial Report 2016-17.
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, meeting
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First aniridia meeting in Ireland review
The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading
Insights from UK Genetic Disorders Leadership Symposium 2017
Advice for creating a definitive source of information about a syndrome and the opportunity to be involved in Jeans For Genes Day were just some of the results of the latest event we attended. Aniridia Network (ANUK) Trustee James was among … Continue reading
Milkshakes fund rare disease charities
A business has found an alternative way of raising money for our charity to shaking collection tins – shaking milk! The Pour House in Shrewsbury opened in 2015 as a coffee house by day and cocktail bar by night. … Continue reading
First aniridia meeting in Ireland
Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading
London meet-up 2016
We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading
What our logo looks like
It occurred to us that some people will never have (clearly) seen the Aniridia Network UK logo designed in 2011. So here’s a description and explanation of the logo: The overall design is a 2 dimensional, stylised, aniridic eye, including … Continue reading
Kids complete Mini Great North Run in aid of aniridia
Four children, one with aniridia took part in this years Mini Great North Run to raise funds for us. Their generous sponsors gave £525 via JustGiving plus a £100 cheque, for them completing the 1.5 kilometre challenge which is open to 3 … Continue reading
2016 Paralympians with aniridia
Athletes with aniridia competed at the Rio 2016 Paralympic Games. Mary Fisher, New Zealand won gold in 100m backstroke S11 with a world record time and 4th or 6th in freestyle swimming at other lengths Amanda Dennis, USA won bronze with her … Continue reading
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