Launch of Aniridia Day: 21 June 2017

Aniridia Day logoJoin us celebrating the first ever international Aniridia Day on 21st June 2017!

What is it?

It will be a exciting time to coordinate activities and improve understanding of the rare genetic eye condition aniridia.  Please take part in the campaigns:

  • During May: write a poem about aniridia for both the UK (£20 prize) and international (€25 prize) poetry competition
  • In June: plan how you will show you are a shining success on Aniridia Day

Aniridia Day is a great chance for all of us around the world to:

  • hold events for people associated with aniridia to meet
  • increase awareness of aniridia,
  • raise funds
  • recruit volunteers

When is it?

Aniridia Day is the same date as the solstice – a property of how high the sun is in the sky. We chose this because of how the brightness and position of the sun plays significantly affects the lives of people with aniridia.

Aniridia Day and the solstice are on 21 June in 2017, 2018 and 2019.

Who can take part?

Everyone! We want Aniridia Day to be a truly international event with people in all countries taking part and using it as the basis for activities – especially in the UK.

Whether you have aniridia, know someone with aniridia or neither, if your work involves aniridia, please get involved with activities, spreading the word or donating time or money to our causes.

Organising

The success of the IrisSelfie campaign by Aniridia Network UK and Aniridia Foundation International inspired Aniridia Day. Trustees, James and Katie have led the creation and running of the committee to organise the campaign with the great support of Aniridia Europe.

James said “We really want people from around the world to join the Aniridia Day Committee, to help with this year’s campaign, and the organising the day in future years.”

Find out more Aniridia Day.

 

If you have any questions or would like to contact us about participating in the day, you can email the team at contact@aniridiaday.org

We look forward to celebrating Aniridia Day with you.

Get writing your poem now!

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About Aniridia Network UK

A charity support group for people with the genetic visual impairment aniridia and their families in the UK. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. Registered as a charity in 2011 with HMRC reference XT26830
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