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Author Archives: Aniridia Network
Privilege, Protest, Power
Talk by Elliott, person with aniridia at Conference 2025 “Identifying privilege, embracing protest and challenging power have all been integral to a journey these 25 years that I could not have imagined. “Fighting for a seat at the table for … Continue reading
Grow your skills, meet new people and help the aniridia community
Are you or someone you know: If ‘Yes’: Come to Bulgaria in April 2026 for the ‘European Aniridia Leadership and Collaboration Academy‘. We’re seeking people with and without aniridia to join a 3-day event aiming to raise your: Practical workshops … Continue reading
Exploring PAX6 related gene regulatory networks & its role in the developing brain
Talk by Samuel Heczko & Dr. Wai Kit (Calvin) Chan, University of Edinburgh at Conference 2025 We all come from a single cell. But how does this cell know when and how to divide into a brain? And how does … Continue reading
Conference 2025
“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading
Posted in Aniridia Network news, Medical staff talking, Patients' tales, Research
Tagged Conference, Conference 2025, event, meeting
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Annual General Meeting 2025
The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, was held online on 1/11/2025. Read minutes and watch a video. Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2025, meeting, trustees
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2025 Volunteer Awards
We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our … Continue reading
Annual Report 2024-2025
Read details of what our officials, members and supporters did as well our finances between 1 April 2024 and 31 March 2025 in the Aniridia Network Annual Report for 2024/25. Key points Thanks to the the amazing input by everyone who … Continue reading
Shape the RNIB aniridia factsheet
We have an opportunity to make what RNIB publishes about aniridia as good as possible. They want your valuable input on their online information. Read and critique it. What is needed RNIB maintains details on its website about various eye … Continue reading
WAGR Weekend 2025
Several of our members affected by WAGR enjoyed meeting in Sussex recently Parents Aaron and Michelle brilliantly organised the 2 day event with International WAGR Syndrome Association (IWSA). Aniridia Network trustee James went along to speak with people and fly our flag. Nearly everyone with WAGR has aniridia. Continue reading
Posted in Medical staff talking, Other agencies, Research
Tagged event, IWSA, Mariya Moosajee, Ngozi Oluonye, WAGR
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