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Author Archives: Aniridia Network
Be a leader of Aniridia Europe 2026-28
Aniridia Europe is recruiting volunteers to be directors, to lead and carry out its activities for the next 2 years. It’s an important and exciting role where you can influence the support provided to aniridia researchers, doctors, associations and patients, across … Continue reading
Attending the 8th European Aniridia Conference as a professional
Nicky, an ophthalmology registrar and PhD student, attended the 8th European Aniridia Conference in Sofia, Bulgaria, thanks to Aniridia Network’s support. The three-day event brought together clinicians, researchers, and families to discuss various aspects of aniridia, while incorporating patient experiences into the dialogue. Notable discussions included cutting-edge research on stem cells and targeted therapies for aniridia-associated keratopathy, showcasing promising developments. Nicky valued the chance to connect with global researchers, exchanging ideas that could enhance current and future projects. Overall, the conference inspired Nicky to provide more tailored support to patients moving forward. Continue reading
Posted in International, Medical staff talking
Tagged Aniridia Europe, Conference, European Aniridia Conference, event
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Meet-ups for Rare Disease Day 2026
We held 4 friendly online/in-person gatherings of patients and their relatives to celebrate Rare Disease Day 2026. London Euston Station: Starbucks: Aaron, Johnathan, Keith, James, Emily and children Cambridge: M&S Food Cafe, Market Hill: Tony, Andy, Laura, Anastasia and children … Continue reading
Bursary for UK professionals to attend European Aniridia Conference 2026
Aniridia Network is offering to fund UK professionals to take part in this year’s European Aniridia Conference (EAC), 17-19 April in Sofia, Bulgaria. EAC enables the sharing of scientific knowledge about the rare genetic eye condition aniridia. Its goal is … Continue reading
Posted in Aniridia Network news, Research
Tagged European Aniridia Conference, grant
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Management of glaucoma associated with aniridia
Talk by Mr John Brookes, Moorfields Eye Hospital, at Conference 2025 A presentation about aniridia issues, particularly regarding how glaucoma is treated in children and adults with aniridia, from medical to laser and surgery. Mr Brookes trained in London and … Continue reading
Posted in Medical staff talking
Tagged Conference, Conference 2025, event, glaucoma, John Brookes, meeting
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Can access to station information improve train travel for people with sight loss?
Talk by Emily Nash, Coventry University, at Conference 2025 Emily Nash is currently completing a PhD in improving access to train travel for people with sight loss. Her research is looking to identify and understand what barriers currently exist, and … Continue reading
Privilege, Protest, Power
Talk by Elliott, person with aniridia at Conference 2025 “Identifying privilege, embracing protest and challenging power have all been integral to a journey these 25 years that I could not have imagined. “Fighting for a seat at the table for … Continue reading
Grow your skills, meet new people and help the aniridia community
Are you or someone you know: affected by aniridia? keen to work better with people to achieve success? willing to help enhance the lives of people affected by aniridia? If ‘Yes’: Come to Bulgaria in April 2026 for the ‘European Aniridia … Continue reading
Exploring PAX6 related gene regulatory networks & its role in the developing brain
Talk by Samuel Heczko & Dr. Wai Kit (Calvin) Chan, University of Edinburgh at Conference 2025 We all come from a single cell. But how does this cell know when and how to divide into a brain? And how does … Continue reading
