Author Archives: Aniridia Network

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.

Review of our achievements since last Aniridia Day

To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading

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Members + Supporters clarification and data check

As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading

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Team Todd’s triathlon triumph

Dan, Sam & Nathan raised £1,385 for us by attempting the Arundel Sprint Triathlon. A huge well done to them and and thank you to everyone who supported them . Dan’s daughter Olivia was born with aniridia in 2013 so … Continue reading

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2021 Annual General Meeting

Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading

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Join our trustee team in 2021/22

Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading

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Faith’s story

“Aniridia affects all aspects of my life but I don’t doubt my abilities and continue pushing my boundaries” Continue reading

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Laura’s story

Laura, who has aniridia, kindly reached out to us to share her story. Her passion for sport and strength to support others to find the enjoyment she has, shines through. For Rare Diseases Day 2021, the key messages are; Rare … Continue reading

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Gene.Vision website about aniridia launched

Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading

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Aniridia Network Online Conference 2020

This year’s Aniridia Day was more important than ever. The absence of our usual conference, due to pandemic restrictions, made it vital to find another way of connecting aniridia patients with one another, and with those who support them. We … Continue reading

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2020 Annual General Meeting

Held online on 21 June 2020 Continue reading

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