Support us
We recommend
Author Archives: Aniridia Network
Review of our achievements since last Aniridia Day
To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading
Members + Supporters clarification and data check
As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading
Team Todd’s triathlon triumph
Dan, Sam & Nathan raised £1,385 for us by attempting the Arundel Sprint Triathlon. A huge well done to them and and thank you to everyone who supported them . Dan’s daughter Olivia was born with aniridia in 2013 so … Continue reading
2021 Annual General Meeting
Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, conference, meeting, trustees
3 Comments
Join our trustee team in 2021/22
Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, meeting, trustees, volunteering
Leave a comment
Faith’s story
“Aniridia affects all aspects of my life but I don’t doubt my abilities and continue pushing my boundaries” Continue reading
Laura’s story
Laura, who has aniridia, kindly reached out to us to share her story. Her passion for sport and strength to support others to find the enjoyment she has, shines through. For Rare Diseases Day 2021, the key messages are; Rare … Continue reading
Gene.Vision website about aniridia launched
Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading
Aniridia Network Online Conference 2020
This year’s Aniridia Day was more important than ever. The absence of our usual conference, due to pandemic restrictions, made it vital to find another way of connecting aniridia patients with one another, and with those who support them. We … Continue reading
2020 Annual General Meeting
Held online on 21 June 2020 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, charity, meeting, registration
5 Comments
">
Aniridia Network 