Tag Archives: online event

Meet-ups for Rare Disease Day 2026

We held 4 friendly online/in-person gatherings of patients and their relatives to celebrate Rare Disease Day 2026. London Euston Station: Starbucks: Aaron, Johnathan, Keith, James, Emily and children Cambridge: M&S Food Cafe, Market Hill: Tony, Andy, Laura, Anastasia and children … Continue reading →

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