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Author Archives: Aniridia Network
Channel swim fundraiser
A woman has raised £2,629 for people with aniridia and WAGR syndrome by completing a gruelling swim across the English Channel – at the second attempt. Nicola S Morgan took on the challenge to help buy a £1,800 electronic magnifier … Continue reading
Send Christmas cards by aniridics to fund treatments conference
Are you planning to post Christmas cards to your friends and family? We suggest you send our e-cards instead and tackle aniridia too! The cards even have lovely designs by children from around the world who have aniridia. Send us your design … Continue reading
Posted in Fundraising
Tagged Christmas, European Aniridia Conference, fundraising, greeting cards
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Scotland & London Meet-Ups
This month we held 2 successful meet-ups in different parts of the UK, bringing together a variety of people affected by aniridia. In the north we were proud to hold our first ever event in Scotland, when trustee Eleanor Burke … Continue reading
100km Thames Path Run Fundraiser
On the weekend of 7-8 September, Kieron Price ran 100 kilometers along the Thames Path in an incredible 21.5 hours. He raised over £900 for aniridia research via Fight for Sight. He took on the challenge because his daughter … Continue reading
Summer Cycling Fundraiser
Teresa & Vaughan Kay, along with their friends Thomas Thorpe & Vicky Grimmer, have challenged themselves to a summer of fundraising, by taking part in 4 big cycling events. And half of all the money raised will go to the … Continue reading
Family fundraising nets £100
Aniridia Network trustee James and his wife set up a stall in their front garden as part of a local jumbletrail. Residents sell bric-a-brac and homemade food while neighbours explore the streets to pick up bargains. They sold a lawnmower, … Continue reading
Research into aniridia symptoms link to genetics
Research has begun into whether the severity of aniridia can be linked to variations in genetics. The scientists need patients to take part. Dr Moosajee has been given money from the UCL Therapeutic Acceleration Award to document the medical history of … Continue reading
Posted in Research
Tagged genetics, Mariya Moosajee, Moorfields, PAX6, UCL Institute of Opthalmology
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Celebrating Difference book crowdfunder
A crowdfunding campaign is underway to publish a book featuring children with rare conditions, including two with WAGR 11p Deletion Syndrome. Give the book your support and get a copy. The proposed book is the result of a photography project … Continue reading
Posted in Campaigns, Patients' tales
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Our soapy gift to volunteers
We’ve said thank you for the great efforts of our volunteers by giving them soap. We also sold some to members to raise money. There’s a nice little story behind this oddity. The liquid hand soap is made by visually … Continue reading
Aniridia Day 21 June 2019
On this year’s day for improving understanding of aniridia around the world, we want you to focus on possibilities: tell everyone what it is possible to do with a visual impairment come together to show there are similar people nearby … Continue reading
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