Teresa & Vaughan Kay, along with their friends Thomas Thorpe & Vicky Grimmer, have challenged themselves to a summer of fundraising, by taking part in 4 big cycling events. And half of all the money raised will go to the Aniridia Network.

So far they have successfully completed 3 events, raising nearly £850 for Aniridia Network:

• 5th May 2019 – Tour De Broads Spring, 100 miles – completed in 6 hours 20 minutes
• 7th July 2019 – Norwich Cycle Swarm, 70 miles – completed in 4 hours 40 minutes
• 18th August 2019 – Tour De Broads Summer, 100 miles – completed in 6 hours 40 minutes

Their final event – the Dusk til Dawn 12 Hour Mountain Bike Night Race – takes place on 5-6 October 2019. Please support them if you can.

They’re doing it for their daughter Rhiannon. She has aniridia, nystagmus and cataracts, and is a “happy, smiley, chatty little girl”. She also loves her regular music sessions, where she has made many friends who are also visually impaired.

Teresa & Vaughan attended our conference last year, where they met others with aniridia for the very first time and enjoyed the various speeches. We also helped them compile a “Pupil Passport”, to help teachers and other care-givers understand Rhiannon’s condition and support needs.

Already their efforts have raised a lot of money and awareness, including appearances on ITV Anglia News and BBC Look East, and articles in the Daily Mail, The Sun and local newspaper the Eastern Daily Press.

We are very grateful they have been inspired to fundraise for us this year, and we wish them all the very best of luck with their final event!