100km Thames Path Run Fundraiser

On the weekend of 7-8 September, Kieron Price ran 100 kilometers along the Thames Path in an incredible 21.5 hours. He raised over £900 for aniridia research via Fight for Sight.

Kireon on a finishers podium wth a medal


Map of troute along the ThamesHe took on the challenge because his daughter Evie has sporadic aniridia. This naturally came as a big shock to Kieron and his partner when she was first diagnosed. But they are giving Evie every support, and they are very happy with the checkups and treatments that Evie is receiving at Great Ormond Street.

Evie is also coping well with the condition, as Keiron explains:

“Because Evie was born with it, she handles it like it’s part of everyday life. She copes and adjusts where she has to. Everyday this little girl surprises me. She’s aware that she has a condition, although she still doesn’t fully understand what it is, but she deals with it. She has asked why she doesn’t have blue eyes like Mum, Dad and now brother so trying to explain the reasons why can be sometimes difficult.

We know the condition won’t define who Evie is and will encourage Evie to try new things. Nor will it stop us to try and find a way to slow it down, stop it, prevent it and hopefully one day cure this disease.”

A huge well done and thank you to Kieron on his achievement! Everyone who knows him is so proud for him.

You can still show your appreciation on his fundraising page.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
This entry was posted in Fundraising and tagged . Bookmark the permalink.

1 Response to 100km Thames Path Run Fundraiser

  1. Pingback: Annual Report 2019-2020 | Aniridia Network

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.