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Author Archives: Aniridia Network
Sunglasses Day raises shade over £30
A class of children has collected £30.10 for Aniridia Network by holding a sunglasses day. Zinovia, who has aniridia and her 8 year old classmates at Milton CofE Primary School brought in a donation and funky glasses this week, as … Continue reading
Bernie and Abbie interview each other
Mother and daughter with aniridia decided to ask each other questions on camera about their lives to celebreate Aniridia Day 2021 Abbie has made other videos about aniridia and other aspects of her life, check them out. To take part … Continue reading
Review of our achievements since last Aniridia Day
To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading
Members + Supporters clarification and data check
As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading
Team Todd’s triathlon triumph
Dan, Sam & Nathan raised £1,385 for us by attempting the Arundel Sprint Triathlon. A huge well done to them and and thank you to everyone who supported them . Dan’s daughter Olivia was born with aniridia in 2013 so … Continue reading
2021 Annual General Meeting
Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Join our trustee team in 2021/22
Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, meeting, trustees, volunteering
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Faith’s story
“Aniridia affects all aspects of my life but I don’t doubt my abilities and continue pushing my boundaries” Continue reading
Laura’s story
Laura, who has aniridia, kindly reached out to us to share her story. Her passion for sport and strength to support others to find the enjoyment she has, shines through. For Rare Diseases Day 2021, the key messages are; Rare … Continue reading
Gene.Vision website about aniridia launched
Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading
