Rare Disease Day 2020 Meetup

Rare Disease Day is always a very good opportunity to bring people together and raise further awareness of aniridia.

People around a bar table

To mark the occasion, trustee Eleanor Burke hosted an aniridia meetup at Wynn’s Hotel in Dublin on Saturday 29 February 2020, from 3pm-6pm.

Despite the very stormy wet weather there were a total of eight people 4 with aniridia. Jill came with her son Stephen, Marty came with his mum and Finton came too. .

Eleanor with Aniridia Day merchandise

Eleanor

The event was free and included a non-alcoholic welcome drink.

Anyone affected by aniridia was welcome to attend, including patients, parents, children and professionals. As proven by the most recent gatherings in Scotland & London, our meetups are a wonderful opportunity for people to share experiences, get supportive advice and make new friends, so please do join us!

If you would like to organise a meetup in your area, then you are more than welcome to do so, and indeed we encourage it. Email meetup@aniridia.org.uk to let us know when and where it will take place, and we’ll help you to promote it.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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