Rare Disease Day is always a very good opportunity to bring people together and raise further awareness of aniridia.
To mark the occasion, trustee Eleanor Burke hosted an aniridia meetup at Wynn’s Hotel in Dublin on Saturday 29 February 2020, from 3pm-6pm.
Despite the very stormy wet weather there were a total of eight people 4 with aniridia. Jill came with her son Stephen, Marty came with his mum and Finton came too. .
The event was free and included a non-alcoholic welcome drink.
Anyone affected by aniridia was welcome to attend, including patients, parents, children and professionals. As proven by the most recent gatherings in Scotland & London, our meetups are a wonderful opportunity for people to share experiences, get supportive advice and make new friends, so please do join us!
If you would like to organise a meetup in your area, then you are more than welcome to do so, and indeed we encourage it. Email firstname.lastname@example.org to let us know when and where it will take place, and we’ll help you to promote it.