This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY.

The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia themselves.

People of all types and ages were there, including a retired person with aniridia, a friend of a patient, a guide dog owner, and a parent of a 6 month old baby with aniridia.

Some people were familiar faces from previous meetups in 2016 and 2015, so it was great to catch-up with them. And for others it was their first time, so it was wonderful to get to know them and introduce them to everybody.

We spent a few hours chatting over coffee and hot chocolate, sharing stories, experiences and useful information. It was a lovely evening and the time flew by.

Thank you to everyone for coming.

If you want to organise a meet-up for people interested in aniridia in your area, like this one, it’s easy to arrange. Just email meetup@aniridia.org.uk.