London meet-up 2016

Two women and two men talking while sat around a table in a coffee shopWe had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today.

Six people with aniridia came along for coffee and chat about their condition.

We met right after the excellent Sight Village event over the road. So some took the opportunity to go there during the day.

Others came later, after work.

It was also be an early celebration of Nystagmus Network Wobbly Wednesday – since 85% of people with aniridia have nystagmus too.

We had a really nice evening. As Glen said best, we all “had a very interesting day looking around Sight Village.and enjoyed meeting others from Aniridia Network UK. Well worth the trip.”

The host was one of ANUK’s trustees, James who has aniridia himself.

If you want to organise a meet-up near you email meetup@aniridia.org.uk.

 

Advertisements

About Aniridia Network UK

A charity support group for people with the genetic visual impairment aniridia and their families in the UK. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. Registered as a charity in 2011 with HMRC reference XT26830
This entry was posted in ANUK news and tagged , , . Bookmark the permalink.

3 Responses to London meet-up 2016

  1. Pingback: London meet-up 7 November 2017 | Aniridia Network UK

  2. Pingback: Fireworks & Frankenstein, Sight Village & Socialising – Well Eye Never

  3. Pingback: London meet-up 2017 | Aniridia Network UK

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s