Author Archives: James

Thanks to the person in front

Dear random pedestrian, You never knew it but you really helped a disabled person today. You came to be walking in front of me, in a environment that I found tricky to navigate alone with my visual impairment. Thank you! … Continue reading

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Just when you thought it was all over

You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading

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Milton Keynes meet-up

We met on met to discuss aniridia and celebrate Rare Disease Day 2015 at Whetherspoons at XScape, Milton Keynes. We had a great evening talking about dealing with school, doctor and even being a stuntman while having aniridia. If you want to meet more … Continue reading

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Protected: James’s jujitsu blue belt and self-defence for the visually impaired

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1 tweet reaps new member, volunteer and website for ANUK

I monitor the internet for mentions of ‘aniridia’. Last week Phil from Liverpool tweeted that his wife, who has aniridia, had been declared ineligible for Personal Independent Payments. I checked our database and found no record of her. So I … Continue reading

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Solar sneezing – effect of light on the nose and brain

I have aniridia and I noticed that when exposed to brightness, particularly sunlight I sneeze within a minute. While taking part in the National Institutes for Health research I took the opportunity to ask Dr Han why this might be. … Continue reading

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A rare glimpse into the ordinary

The National Institutes Of Health have published an article and video about their study in to obesity and WAGR/11p deletion syndrome. It features Aniriida Network UK trustee James who took part as a ‘aniridia only’ patient. You can also read … Continue reading

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James @ National Institutes of Health

Introduction Earlier this year I travelled to the USA to take part in medical research related to aniridia. It and the accompanying holiday was a very special experience. Background National Institutes of Health The National Institutes of Health in the … Continue reading

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Combating overhaning branches

I’ve got an idea in my head to do something about plants that obstruct the pavement. I’m fed up with ducking, flinching or actually getting scratched by the branches or leaves of things growing in people’s front gardens. That’s my … Continue reading

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Unveiling the aniridia visor

Two baseball caps put together to block bright floors as well as sun. Continue reading

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