London meet up 2015

People with aniridia and parents sitting around a table in a coffee shopWe’re had an informal get together in Kensington on today. Ten people came along to for coffee and chat about aniridia. This included people of all ages who have it and parents of those who do.

It was held as a fringe event right after the excellent, free Sight Village London event for people with visual impairments.

It was also an early celebration of the annual Nystagmus Network ‘Wobbly Wednesday’ – 85% of people with aniridia have nystagmus too.

The hosts were two of ANUK’s trustees who have aniridia themselves. Katie was there initially. Then James took over in the evening for those, like him, coming after work.

If you want to organise a meet-up near you email meetup@aniridia.org.uk.

 

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About Aniridia Network UK

A charity support group for people with the genetic visual impairment aniridia and their families in the UK. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. Registered as a charity in 2011 with HMRC reference XT26830
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One Response to London meet up 2015

  1. Pingback: London meet-up 7 November 2017 | Aniridia Network UK

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