We’re had an informal get together in Kensington on today. Ten people came along to for coffee and chat about aniridia. This included people of all ages who have it and parents of those who do.

It was held as a fringe event right after the excellent, free Sight Village London event for people with visual impairments.

It was also an early celebration of the annual Nystagmus Network ‘Wobbly Wednesday’ – 85% of people with aniridia have nystagmus too.

The hosts were two of ANUK’s trustees who have aniridia themselves. Katie was there initially. Then James took over in the evening for those, like him, coming after work.

If you want to organise a meet-up near you email meetup@aniridia.org.uk.