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JULBO Kids sunglasses with loop SP4
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Tag Archives: fundraising
Laura’s story
Laura, who has aniridia, kindly reached out to us to share her story. Her passion for sport and strength to support others to find the enjoyment she has, shines through. For Rare Diseases Day 2021, the key messages are; Rare … Continue reading
Channel swim fundraiser
A woman has raised £2,629 for people with aniridia and WAGR syndrome by completing a gruelling swim across the English Channel – at the second attempt. Nicola S Morgan took on the challenge to help buy a £1,800 electronic magnifier … Continue reading
Send Christmas cards by aniridics to fund treatments conference
Are you planning to post Christmas cards to your friends and family? We suggest you send our e-cards instead and tackle aniridia too! The cards even have lovely designs by children from around the world who have aniridia. Send us your design … Continue reading
Posted in Fundraising
Tagged Christmas, European Aniridia Conference, fundraising, greeting cards
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Summer Cycling Fundraiser
Teresa & Vaughan Kay, along with their friends Thomas Thorpe & Vicky Grimmer, have challenged themselves to a summer of fundraising, by taking part in 4 big cycling events. And half of all the money raised will go to the … Continue reading
Family fundraising nets £100
Aniridia Network trustee James and his wife set up a stall in their front garden as part of a local jumbletrail. Residents sell bric-a-brac and homemade food while neighbours explore the streets to pick up bargains. They sold a lawnmower, … Continue reading
1,000 Miles in 200 Days Fundraiser
Laura Cartmill has aniridia and autism, which presents challenges for her everyday life. But she hasn’t let her impairments get in the way of her ambition to achieve and inspire. For example, she plays football at the Torquay United club … Continue reading
Orbit abseil fundraiser
Today I took a big leap to raise £1070 for aniridia. I abseiled 80 metres (262 feet) down the Orbit Tower in London. It was organised by Moorfields Eye Charity, and I was very keen to take on the challenge. … Continue reading
500km Bike Ride Fundraiser
Cyclist Matt Hill took on his biggest challenge yet in aid of the Aniridia Network – riding 500km in a single day! That’s 100km further than the ride he completed for us last year. On Saturday 16th June, Matt cycled across … Continue reading
Half Marathon Fundraiser
Katja Lumezi’s daughter Tina was born with aniridia, and from the moment she was diagnosed they have received “immensely valuable” support from the Aniridia Network and Moorfields Eye Hospital. To show their gratitude, Katja ran the Hackney Half Marathon on … Continue reading
Clear out raises over £35
Like everyone, we’ve got stuff in the house we don’t really need. So as part of a neighbourhood event we held a jumble sale in front of our house. The proceeds were split between our two favourite charities. Once we … Continue reading





