-
Support us
Tag Archives: Conference
Living with aniridia – A generational perspective presentation
Session at Aniridia Network UK Conference 2014 By: Mary Cox Mary Cox, her father, and her two daughters were born with aniridia. 2014 was the centenary of her father’s birth. In the previous 100 years understanding and treatment of the … Continue reading
Emerging molecular therapies for aniridia presentation
Session at Aniridia Network UK Conference 2014 By: Professor Colin E. Willoughby The first part of this talk introduced the genetics of aniridia and in particular, the underlying molecular mechanisms, as this will form the basis to understand the developments in … Continue reading
Mark and Harry: Our journey with aniridia presentation
Keynote session at Aniridia Network UK Conference 2014 There was no history of aniridia in the family, but when Harry arrived their journey with aniridia had begun. This session is a personal account of learning to deal with Harry’s aniridia … Continue reading
Posted in Parents' accounts, Patients' tales
Tagged Conference, Conference 2014, event
Leave a comment
Annual Report & Accounts 2013/14
We hope that you have been keeping up to date with what has been going on for Aniridia Network UK (ANUK) through the newsletters that we send out during the year. To summarise those and add insight into what happens … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, Conference, Conference 2014, meeting, trustees
Leave a comment
Notice of 2014 Annual General Meeting
Notice is hereby given that the Annual General Meeting of Aniridia Network UK will be held at: Armada House, Telephone Avenue, Bristol, BS1 4BQ at 15.30pm on 7 June 2014 to transact the following business. Agenda Minutes of the previous … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
2 Comments
Review of Aniridia Network UK Conference 2013
By Sarah Conference 2013 was the first Aniridia Network UK (ANUK) conference that I had attended. I had quite an intense experience as I was there in both personal and official capacities – having aniridia and being part of the conference … Continue reading
Conference 2013 – a parent’s review: ‘Good Vibrations’
By Susan, the parent of a 4-year-old daughter with aniridia and WAGR/11p Deletion Syndrome. I am so glad I went to this year’s Aniridia Network UK (ANUK) annual conference. I had almost decided to give it a miss but it turned … Continue reading
Protected: Life with aniridia by Ben and Lois
There is no excerpt because this is a protected post.
Volunteer to help organise our 2013 conference
We urgently need a keen, reliable volunteer to help us to organise our next conference. How about you? The Aniridia Network UK Conference 2013 will be in London. Sadly Heather, who did the job last year, unexpectedly has to return … Continue reading
1st European Conference on Aniridia: Day 3
Day 1 and day 2 had been the scientific conference. Today was for a wider audience: those affected by aniridia. There were a series of short presentations, alternating between Norwegian and English. The English ones were slightly simplified, shortened versions … Continue reading
Posted in Other agencies, Research
Tagged Aniridia Europe, Conference, European Aniridia Conference
2 Comments
Aniridia Network 