Living with aniridia – A generational perspective presentation

Session at Aniridia Network UK Conference 2014

By: Mary Cox

Mary Cox, her father, and her two daughters were born with aniridia.  2014 was the centenary of her father’s birth.  In the previous 100 years understanding and treatment of the condition has improved greatly.  But people still have to deal with the consequences that aniridia has on their daily life.  The focus of Mary’s talk was the impact that aniridia has had on her whole family, lessons they have had to absorb, changes they have had to accommodate, and some practical tips to help others.

Mary previously spoke more about her life at Cornea Connect 2013.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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