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Category Archives: Aniridia Network news
First aniridia meeting in Ireland review
The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading
Insights from UK Genetic Disorders Leadership Symposium 2017
Advice for creating a definitive source of information about a syndrome and the opportunity to be involved in Jeans For Genes Day were just some of the results of the latest event we attended. Aniridia Network (ANUK) Trustee James was among … Continue reading
First aniridia meeting in Ireland
Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading
London meet-up 2016
We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading
What our logo looks like
It occurred to us that some people will never have (clearly) seen the Aniridia Network UK logo designed in 2011. So here’s a description and explanation of the logo: The overall design is a 2 dimensional, stylised, aniridic eye, including … Continue reading
Call for Aniridia Network Ireland
By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading
Posted in Aniridia Network news, Patients' tales
Tagged Conference, event, Republic of IIreland, volunteering
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Just when you thought it was all over
You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading
Presentations & Exhibition at Meeting 2016
After the morning riding tandems and playing VI cricket, the Aniridia Network UK Meeting 2016 moved to nearby Holy Trinity church. Sitting down to for lunch gave us all more opportunities to chat, meet up with and make new friends. “Meeting … Continue reading
2016 Annual General Meeting
The Annual General Meeting of Aniridia Network UK was held at: Holy Trinity Church , Maldon Road, Wallington, SM6 8BL at 2:30pm 14 May 2016 Read the minutes of the ANUK 2016 AGM (pdf) Agenda ANUK AGM minutes 2015 to be agreed Matters … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Tandems and Cricket – Meeting 2016
The main Aniridia Network UK event of 2016 took place in Wallington, Surrey. In a change from our usual format, we spent the morning in a park. dry and clear, ideal for trying out tandem riding and visually impaired cricket. Lots of … Continue reading
Posted in Aniridia Network news
Tagged Conference, Conference 2016, cricket, meeting, sport, tandem
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