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Category Archives: Aniridia Network news
Walk through London at night raises £742 for aniridia research
I’m a reasonably happy walker. Five miles or so can be very pleasant on a nice day. Also, I know people who’ve done the Moonwalk for breast cancer, who I didn’t think were necessarily much fitter than I was, at least with the … Continue reading
Posted in Aniridia Network news, Fundraising, Research
Tagged Fight For Sight, fundraising
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£500 donation from 200 mile bike ride
A huge thank you to parents Caryl and Tristan for a £500 donation resulting from taking part in a 200 mile charity bike ride from Caernarfon to Cork. It will make it possible for us to print leaflets for hospitals … Continue reading
Collection at Catterick nets £419 for ANUK
Today Aniridia Network UK Fundraising Officer Liz and her relatives put on ANUK t-shirts and took collecting buckets to the Sunday market at Catterick Racecourse in Yorkshire. Shoppers give their change as they leave the market. The day was sunny … Continue reading
Meet-up in Bristol on 5 October 2013
4:30pm, Terrace Bar/Coffee Shop, Bristol City Centre Marriot Hotel, 2 Lower Castle Street, Old Market, Bristol, BS1 3AD RSVP: meetup@aniridia.org.uk Anyone affected by aniridia, including relatives are invited to join us in Bristol to find out more about each other … Continue reading
Posted in Aniridia Network news, Other agencies, Parents' accounts, Patients' tales
Tagged meetup, nystagmus, nystagmus network
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£1,000 donation from Ride London team
We had a £1000 donation from “the Fairy Queen Dream Team”, who completed the RideLondon-Surrey 100 cycling event today. The team was headed up by James, father of Ella who has WAGR/11p Deletion Syndrome. They were primarily raising funds for … Continue reading
1 tweet reaps new member, volunteer and website for ANUK
I monitor the internet for mentions of ‘aniridia’. Last week Phil from Liverpool tweeted that his wife, who has aniridia, had been declared ineligible for Personal Independent Payments. I checked our database and found no record of her. So I … Continue reading
Cakes, car washes and stocks at RNC/ANUK fundraiser
On the 1 and 2 July 2013, Rosie, Megan and I joined together as a group to raise money for Aniridia Network UK and our further education college RNC (Royal National College for the Blind). Over the 2 days, we held 3 events which … Continue reading
Review of Aniridia Network UK Conference 2013
By Sarah Conference 2013 was the first Aniridia Network UK (ANUK) conference that I had attended. I had quite an intense experience as I was there in both personal and official capacities – having aniridia and being part of the conference … Continue reading
Phil’s triathlon raises over £500 for ANUK
A massive thank you and well done to Phil who has raised £560 for Aniridia Network UK by running a triathalon. The race at Ripon racecourse in Yorkshire was his first ever attempt at the swimming, cycling, running challenge. Here’s … Continue reading
Posted in Aniridia Network news, Fundraising
Tagged collection, fundraising, triathlon
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Knighthood for member of our medical panel
Professor Peng Tee Khaw, a who sits on the Aniridia Network UK medical panel, was awarded a knighthood in the Queen’s 2013 Birthday Honours. The consultant ophthalmic surgeon received the honour for services to ophthalmology. At the Aniridia Network UK … Continue reading
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