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Category Archives: Aniridia Network news
Review of Aniridia Network UK Conference 2013
By Sarah Conference 2013 was the first Aniridia Network UK (ANUK) conference that I had attended. I had quite an intense experience as I was there in both personal and official capacities – having aniridia and being part of the conference … Continue reading
Phil’s triathlon raises over £500 for ANUK
A massive thank you and well done to Phil who has raised £560 for Aniridia Network UK by running a triathalon. The race at Ripon racecourse in Yorkshire was his first ever attempt at the swimming, cycling, running challenge. Here’s … Continue reading
Posted in Aniridia Network news, Fundraising
Tagged collection, fundraising, triathlon
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Knighthood for member of our medical panel
Professor Peng Tee Khaw, a who sits on the Aniridia Network UK medical panel, was awarded a knighthood in the Queen’s 2013 Birthday Honours. The consultant ophthalmic surgeon received the honour for services to ophthalmology. At the Aniridia Network UK … Continue reading
Meet-up in Newcastle 24 February 2013
People in North East England affected by aniridia came together in on Sunday 24 February for lunch and chat and fun. The lunchtime meet-up was in Zizzi in Metrocentre, Newcastle Partners, family and friends of people affected by aniridia were all … Continue reading
Posted in Aniridia Network news, Parents' accounts, Patients' tales
Tagged meeting, meetup
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Volunteer to help organise our 2013 conference
We urgently need a keen, reliable volunteer to help us to organise our next conference. How about you? The Aniridia Network UK Conference 2013 will be in London. Sadly Heather, who did the job last year, unexpectedly has to return … Continue reading
London meet-up 2012
The next aniridia meet-up will be a social evening on Wednesday 7 November 2012 in London. It’s the same date and area as Sight Village London. Like last time it’s going to be a “really interesting night”. Everyone affected by aniridia, including relatives is invited to … Continue reading
Protected: Buddy scheme profiles needed
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Protected: New trustee Sarah reflects on her first board meeting
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Andrew’s introduction
Andrew successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person because he was busy “in the process of making homemade bread and cakes with a bunch … Continue reading
Conference 2012 review
“A fantastic and informative event” is how those who were there described the Aniridia Network UK Conference 2012. A mix of presentations, discussion time, formal elections and a social event – it was the biggest event we have staged to … Continue reading
