-
Support us
Author Archives: Aniridia Network
Emerging molecular therapies for aniridia presentation
Session at Aniridia Network UK Conference 2014 By: Professor Colin E. Willoughby The first part of this talk introduced the genetics of aniridia and in particular, the underlying molecular mechanisms, as this will form the basis to understand the developments in … Continue reading
Stem cell research and treatment for aniridia presentation
Session at Aniridia Network UK Conference 2014 Introducing Cells For Sight By: Dr Alex Shortt PhD FRCOphth The Cells for Sight Transplantation and Research Programme. is a group of scientists and clinicians who work together at Moorfields Eye Hospital and the … Continue reading
Mark and Harry: Our journey with aniridia presentation
Keynote session at Aniridia Network UK Conference 2014 There was no history of aniridia in the family, but when Harry arrived their journey with aniridia had begun. This session is a personal account of learning to deal with Harry’s aniridia … Continue reading
Posted in Parents' accounts, Patients' tales
Tagged Conference, Conference 2014, event
Leave a comment
Annual Report & Accounts 2013/14
We hope that you have been keeping up to date with what has been going on for Aniridia Network UK (ANUK) through the newsletters that we send out during the year. To summarise those and add insight into what happens … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, Conference, Conference 2014, meeting, trustees
Leave a comment
Cornea Connect brings researchers and patients together
Researchers into aniridic keratopathy held a event so they could meet people affected by the condition so they could learn about each other. Corneal opacification affects people with aniridia because of deficiencies in the eye’s limbal stem cells. The Cells … Continue reading
Posted in Aniridia Network news, Other agencies, Patients' tales, Research
Tagged Limbal stem cells
4 Comments
Doing karate while visually impaired
By Elliott, 14 For a lot of my life martial arts been on the list of things I wanted to do. It all started when my mum was walking me and my sister home from school, when leaflets about karate … Continue reading
It’s tough to be different -The Adventures of Zip and Mike
Being born with aniridia, I’ve spend most of my life discovering that people often know who I am long before I ever meet them. Word would spread quickly around the schools I attended and the places I went, and I … Continue reading
Posted in Patients' tales
1 Comment
50 years with aniridia
To discover that your child has been diagnosed with Aniridia is upsetting and stressful. In 1964 it was devastating. Diagnosis: blindness, prognosis, no hope. I have read my recently deceased mothers diaries and her hopelessness, despair and unfounded guilt are … Continue reading
Posted in Parents' accounts, Patients' tales
3 Comments
“Artificial iris implant surgery is not a very difficult procedure and is becoming more popular”
“Cataract surgery in eyes with iris defects can be challenging, but careful preparation as well as recent advances in surgical instruments and iris implants mean outcomes are significantly improving for these patients.” This was the subject of a presentation given … Continue reading
Join our trustee team for 2014/15
Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t take it for granted that others will do it all or even as well as you could. We’re seeking … Continue reading
Aniridia Network 