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Author Archives: Aniridia Network
Thanks to Dassault for technical donation
A big thank you to Dassault Systems for donating audio-visual equipment to Aniridia Network UK. Tony and colleagues, working in Warrington took part in a challenge to buy an item for up to £200 for a charity. He remembered our Christmas … Continue reading
London meet up 2015
We’re had an informal get together in Kensington on today. Ten people came along to for coffee and chat about aniridia. This included people of all ages who have it and parents of those who do. It was held as a … Continue reading
Review of Newcastle Conference 2015
By Sarah, part of the Conference committee Preparing and planning Organising for a conference is a bit like making a large purchase. You do your research, ask people who can help and enlist the help of a friend or two, Once you … Continue reading
A strong child and a great council visual team
I feel I need to share this with you all. My daughter was diagnosed with aniridia at 6 months old and has grown from strength to strength. She is now 6 years old and each day she surprises me with … Continue reading
Help with conference costs
The cost of travelling to and attending our events is a big issue for some people. A family in Wales who receive support from their local integrated team for disabled children (social services) found a solution. They asked their social worker … Continue reading
Francesca’s student life
This article by Francesca is about finding her feet in her first year at uni and a few pointers for anyone who’s heading there in the next few weeks, from her perspective. Francesca has aniridia and writes in Brighter Futures … Continue reading
Thousands raised for aniridia research and support
Hardy cyclists tackled a 100-mile bike ride to raise more than £10,000 for crucial eyesight-saving research, inspired by Ella a girl who has aniridia as part of WAGR syndrome and is also deaf. A 22-strong team, led by Ella’s dad … Continue reading
ANUK is dead! Long live ANUK!
We want to dissolve Aniridia Network UK and replace it with something better. Your vote in favour is vital. It may be a surprise to hear that Aniridia Network UK is not as much of a charity as it could … Continue reading
Attending your first conference – it will be more positive than you think
By Heather B I attended an ANUK Conference for the first time in 2014. My daughter was diagnosed with aniridia at 5 weeks old, she is now 3 years old so I had managed to avoid the conference for 2 years. I knew … Continue reading
Screening embryos for aniridia available in UK
It is now possible to avoid passing on aniridia to children using a procedure called pre-implantation genetic diagnosis (PGD) How did PGD become available for aniridia in the UK? The Human Fertilisation & Embryology Authority (HFEA) maintains a list of … Continue reading
Posted in Medical staff talking, Other agencies
Tagged Genetic Alliance UK, genetics, HEFA, PGD
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