ANUK is dead! Long live ANUK!

Charity XT26830 as if printed with a rubber stampWe want to dissolve Aniridia Network UK and replace it with something better.
Your vote in favour is vital.

It may be a surprise to hear that Aniridia Network UK is not as much of a charity as it could be. We only have HMRC code (above right) that lets us claim Gift Aid.

For many years we’ve wanted to register with the Charity Commission, to get the talisman of a proper charity number. It would help us get funding and discounts. However until recently we were not big enough to qualify and didn’t have the time to work on it. That’s now changed.

Unfortunately registration is not as simple as filling out a form. Legally we have create a new type of charity. transfer everything over to it and close down the old organisation.

You, our members, need to vote in favour at our upcoming annual general meeting for us to go ahead.


Outwardly very little will change. We’ll keep providing all the services we currently do.

There are lots of technicalities. You are very welcome, and ecouraged to examine the proposed new constitution and compare it to our current constitution. The main changes are:

  • revised ‘Objects’ that explain what the charity does
  • a maximum of 5 trustees instead of no maximum
  • the need to have 5% of the membership at official meetings instead of 10%
  • status of charitable incorporated organisation instead of unincorporated association

In some ways it all seems like a big change, in others not. We can make amendments to the constitution or create rules in future.

What you need to do

People at tables watching a speaker at a podium and others seated as a panelIf possible, come to our conference on 26 September 2015 in Newcastle. There we will hold a meeting where you can discuss and then vote on the official resolution on the issue.

To help keep this meeting as concise as possible, please read up on our proposal and ask questions beforehand. You can post queries below or email

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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3 Responses to ANUK is dead! Long live ANUK!

  1. We’ve received this comment:

    “Have read new constitution and it all seems fine except 16:
    ‘Reappointment of Trustees ‘trustees who has served 3 consecutive terms may not be reappointed for a 4th term, but can be reappointed after 3 years’
    Could this lead to loosing most trustees at the same time or not getting any new trustees, bearing in mind that we have difficulty in getting people to volunteer? I appreciate that this will be off in the distance and that we probably have no control over this clause.


    This is an excellent point. We indeed struggle to get volunteers, let alone trustees.

    The Charity Commission’s guidance is:

    ‘Optional provision to limit the number of consecutive terms that a trustee can serve for, which may help to encourage regular turnover and change on the trustee board. (It is good practice to aim for a balance between continuity and change.) ‘

    The Board debated the clause and decided to include it.

    Technically a 1 year break for a trustee would reset the clock. There is also the clause that if there are fewer than 3 trustees those remaining must act to fill the spaces. I speculate that the need to sustainan of the organisation would be considered to trump the required to retire. If it causes difficulty in future, in extremis the clause could be ammended by a vote of members at a general meeting.

    If you feel strongly about it you are welcome to propose a ammendment at this or a future general meeting.

    Any more questions? 🙂

  2. Pingback: Changing our name | Aniridia Network UK

  3. Pingback: Charity registration achieved | Aniridia Network UK

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