Tag Archives: HB

Attending your first conference – it will be more positive than you think

By Heather B I attended an ANUK Conference for the first time in 2014. My daughter was diagnosed with aniridia at 5 weeks old, she is now 3 years old so I had managed to avoid the conference for 2 years. I knew … Continue reading

Rate this:

Posted in Patients' tales | Tagged , , , | Leave a comment

A child with a rare condition brings additional challenges and opportunities

By Heather B Being the parent of a child with a rare condition brings with it an additional layer of challenges and opportunities. Both my children were born with medical conditions but only one is rare. Natasha was born with … Continue reading

Rate this:

Posted in Parents' accounts | Tagged , | Leave a comment

Heather’s voyage of discovering support for herself and Zoe

Heather is mum to bright and bubbly four-year-old Zoe who attends the Royal London Society for the Blind Nursery. Zoe has aniridia and is registered ‘Severely Sight Impaired.’ Heather does not allow Zoe’s sight condition to define her; instead she … Continue reading

Rate this:

Posted in Parents' accounts | Tagged , , , | Leave a comment