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Author Archives: Aniridia Network
Mark’s 115km triathlon for ANUK
With your support Mark swam, cycled and ran 115 kilometres to raise £185 for Aniridia Network UK. He trained for the Cleveland Steelman triathlon earlier this month. It began with a 2,000m swim around a lake. Then straight out of the water … Continue reading
Call for Aniridia Network Ireland
By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading
Posted in Aniridia Network news, Patients' tales
Tagged Conference, event, Republic of IIreland, volunteering
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Gleb’s Living with aniridia video
By Gleb Transcript Hi guys. My name is Gleb and today I’m going to talk about aniridia and my life basically So I have aniridia. For those who don’t know, what aniridia is. it is the inherited sporadic eye … Continue reading
Presentations & Exhibition at Meeting 2016
After the morning riding tandems and playing VI cricket, the Aniridia Network UK Meeting 2016 moved to nearby Holy Trinity church. Sitting down to for lunch gave us all more opportunities to chat, meet up with and make new friends. “Meeting … Continue reading
2016 Annual General Meeting
The Annual General Meeting of Aniridia Network UK was held at: Holy Trinity Church , Maldon Road, Wallington, SM6 8BL at 2:30pm 14 May 2016 Read the minutes of the ANUK 2016 AGM (pdf) Agenda ANUK AGM minutes 2015 to be agreed Matters … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Tandems and Cricket – Meeting 2016
The main Aniridia Network UK event of 2016 took place in Wallington, Surrey. In a change from our usual format, we spent the morning in a park. dry and clear, ideal for trying out tandem riding and visually impaired cricket. Lots of … Continue reading
Posted in Aniridia Network news
Tagged Conference, Conference 2016, cricket, meeting, sport, tandem
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Skin in the game – participation in aniridia research
Sarah tells how her skin sample is helping research into aniridia, and yours can too. Having a rare eye condition can seem like a disadvantage a lot of the time, but there are times when you get an exciting opportunity to … Continue reading
Serena and Violet with aniridia and thier mums make friends
I met Dawn and Serena at an event held at Eureka Museum in Halifax aimed at visually impaired children. I recognised her from an Aniridia Network UK conference we had both attended in previous years, So I approached her to … Continue reading
Report on long-term results of artificial iris implants
A review of 34 patients with congential, traumatic iatrogenic aniridia who had surgery to implant artificial irises has found: No repositioning of prostheses was necessary. In cases of keratopathy (17.6 %) visual function increased from baseline mean. The remaining iris … Continue reading
Hannah’s rare story
Today is the rarest of days , so what better day to raise awareness of rare conditions and the people that live with them every day. I am 1:47,000 which makes this 1:1401 day (365×4+1) sound common. What makes me … Continue reading
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