Gleb ‘s Living with aniridia video

By Gleb

Transcript

Hi guys. My name is Gleb and today I’m going to talk about aniridia and my life basically
So I have aniridia. For those who don’t know, what aniridia is. it is the inherited sporadic eye disease which can appear in 3 aspects. In my case the 2 main aspects are nystamgus which is the involuntary movement of the eye and glaucome which is high pressure. I use eye drops twice a day to keep my eye pressure stable.

So talking about school. This year is very important for me because I will be taking my GCSE examinations. The next step will be going to college.
At school I always sit at the front and I usually ask the teachers to print off all the materials for the lessons so I can see it better. I sometimes use a magnifier but not often because the teachers print on A3 paper.

I go to school on my own however I don’t cross many roads.
At traffic lights I can see pretty good compared to numbers of buses, stops and trains.

On the computer many people argue that you need specific levels of magnification because you can’t see the text. But personally I find that I don’t have to use magnifications here because my vision is good enough to see any words and pictures and I can work on the computer really easily.

You can read book really easily if the size of the text is visible to you and sometimes if you want to use a magnifier then do.

Now my video ends. If you have any questions please ask I will be glad to answer all of your questions.

See you next time and have a good time. Bye bye .

Tell people about your life with aniridia

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About Aniridia Network UK

A charity support group for people with the genetic visual impairment aniridia and their families in the UK. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. Registered as a charity in 2011 with HMRC reference XT26830
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